Saturday, March 26, 2011

solidarity

Wish i could be protesting in London today. There are so very many things to be protesting against right now.

I hope it goes well and makes a difference.
Published with Blogger-droid v1.6.8


(Edited to add, that was mainly a test of posting through my phone. It worked!)

Wednesday, March 23, 2011

How will today's budget affect disabled people?

I didn't watch the Budget live this afternoon, and when I was back online I was expecting a flurry of tweets about how it would affect disabled people. There was nothing. The BBC summary of Key Points, and the Independent's summary do not mention disabled people at all, and the BBC Budget Calculator, to work out how much better or worse off will you be in the coming year following the Budget is only for people in paid employment, with no mention of benefits as income other than non-state pensions.

The one piece of possibly good news is that the government are going to 'revisit the issue' of whether the Mobility Component of DLA should be removed for those in residential care.

In the Guardian Columnists' Verdict of the budget. Jackie Ashley says,
I was reminded of that speech Neil Kinnock made back in 1983, warning of the dangers of a Tory government: "I warn you not to be ordinary," he said, "I warn you not to fall ill, I warn you not to get old."

His warnings seem appropriate today: this budget was all about help for business, but with little regard for those not lucky enough to be able to fund a start-up. What about the old? What about the disabled?
and she summarises that, "There was no mitigation of the £18bn cuts in welfare announced in the spending review last autumn".

And for those of you with private jets, I'm afraid you will be paying a little more, but don't worry, the reduction in corporation tax may help to ease the blow.

It is hard to understand why corporations will be paying less, and disabled people barely merit a mention. If the mobility component of DLA for people in residential care is kept, that is a good thing, but all the rest of the disability benefit cuts look like they are still going ahead.

Like I said, I did not watch the Budget myself, and am relying on others' reports about it, but from what I can see, we are again invisible.

[Edited to add: We have had confirmation from Anne Begg MP about what is happening with the Mobility Component of DLA for people in residential care. She says, "They have just delayed it by 2 years. Savings shown in Red Book from 2013 instead of 2011 which was original plan".]

Wednesday, March 09, 2011

“Rape is the only crime in which the victim becomes the accused.” - Freda Adler


If I was a journalist, and I was reporting on the alleged gang rape of an 11 year old girl, I imagine I would discuss the horror of the situation. I would talk to experts on child rape, and perhaps provide sources of support and information. I would write about the long-term effects that such an assault can have on a girl, and I would perhaps discuss what may be involved in the legal process ahead for this child and the accused men and boys.

However, in researching the story, I found this,
But this is a case that has divided this Liberty County town.

Some sympathize with the suspects, saying the alleged victim was a willing participant, even though she is too young to give legal consent
as reported in My Fox Houston and elsewhere.

That information would change my approach altogether. Her local community and fellow students coming out with statements like,
""To be honest, she looks older than she really is," says Brandi Foster",

and

"“Where was her mother? What was her mother thinking?” said Ms. Harrison, one of a handful of neighbors who would speak on the record"


This girl was allegedly raped by as many as 20 men and boys. She was 11 years old.

Not only are the child, and her mother, being blamed for her assault, an awful lot of concern is expressed for the defendants.
“It’s just destroyed our community,” said Sheila Harrison, 48, a hospital worker who says she knows several of the defendants. “These boys have to live with this the rest of their lives.”

and

“It’s devastating, and it’s really tearing our community apart,” she said. “I really wish that this could end in a better light.” (from NY Times)

and

Sherry Fletcher, whose 20-year-old son Devo Shaun Green is among those charged, spoke to the network about her son's arrest. She said: 'It just seems like a dream. 'I just hope everything comes out well, because some of these kids are innocent.' (from Daily Mail, safe link).

Why is nobody asking what happened in one community to potentially create 20 rapists? Why is nobody expressing concern for the child at all? Why is it that the concern about the legal action is focused on the effect on the accused men, not the effect on the girl?

And if I was a journalist reporting this story, I would never, ever do what the New York Times in particular did, and report uncritically on a community's victim-blaming of an 11 year old girl who has had video of her alleged gang rape passed around her school, and which is now being investigated by the police.

James McKinley, the journalist, considers it newsworthy that
Residents in the neighborhood where the abandoned trailer stands — known as the Quarters — said the victim had been visiting various friends there for months. They said she dressed older than her age, wearing makeup and fashions more appropriate to a woman in her 20s. She would hang out with teenage boys at a playground, some said.

He does not report that it does not matter what a woman or girl is wearing. It does not matter if she 'dresses her age' or not. It does not matter if she wears make-up. He does not even question these statements, he just quotes them as they stand. He does not even mention that an 11 year old child is considered to be always incapable of consent in the law.

People should know better. The New York Times in particular should.

Other online reports of this story have comments like,
It doesn't make it right but when all the truth comes out I won't be surprised if it turns out that she was telling everyone she was 17 yrs old and that she probably orchestrated the whole thing. A lot of young people's lives will be ruined by this young, promiscuous girl. Something this big had to have been planned. Put them all in jail including the young girl.

This misogyny has to end! It does not even matter if she had told anyone she was 17. Or 27. Or 87. Women and girls get raped through no fault of their own. How many times do we need to report this until it is understood?

Thank you to Women's eNews for the photo, and to Liz Henry for the heads-up to the story.

(cross-posted at The F Word blog).

Tuesday, March 08, 2011

What a difference 10 months make...

Sheffield City Hall. In preparation for the Liberal Democrat conference this weekend, fences have been erected, roads will be closed, buses changing routes, shops closed, for fear of the Rage against the Lib Dems and other inevitable protests.

The Sheffield Star says,
In a bid to keep party delegates safe at the three-day spring summit, mobile fencing has been erected around the venue in Barker’s Pool to keep protesters out.

It is thought thousands of demonstrators could come to Sheffield to protest at Liberal Democrat policies and coalition with the Conservatives.

Compare and contrast with this image. That is a group of people at the same place - Sheffield City Hall. The banners are being aimed at - the Liberal Democrats.



Right to Work criticise the cost of the police operation, saying
“The police operation is costing at least £2 million and the people of South Yorkshire will have to pay to protect the very people making the cuts and destroying their lives.”


Details of Saturday's protest are available here. There are so many issues to protest about. Just take your pick.

(Hat-tip to Sheffield Green Party for the image and the comparison image link).

Monday, March 07, 2011

7 Years Old

This blog is 7 years old today.

Wolfram Alpha tells me that 7 years is equal to 84 months, 365 weeks, 2555 days, 61320 hours, 6.995025 anomalistic years, or 6.99508694957 sidereal years.

In other '7 year' news, The Eiffel Tower is painted approximately once every 7 years and requires nearly 50 tons of paint each time according to this site. And it appears to be a myth that in the length of time this blog has existed, I have replaced every cell in my body.

Happy birthday, hippie blog!

Endometriosis Awareness Week 2011



This week is Endometriosis Awareness Week, and as someone who has the disease I wanted to raise a bit of awareness of it here.

Endometriosis is surprisingly common, and can vary in severity and symptoms from woman to woman. In my case I get extreme pain with my period, and very heavy and prolonged bleeding. I have not tried to get pregnant, so do not know for sure if it has affected my fertility, but I have been told that it probably has seriously reduced my chances of a successful pregnancy. But as a happily child-free person, that is not a personal concern.

So for me, it's the pain. And when I say that I get pain with my period, you may feel you have an idea what that would mean, because many women get pain with their periods. When my periods first started as a teenager, I got period pain. It hurt, and I'd take two paracetamol and it would calm down. I had no idea what was to come for me! After 12 months of relatively normal periods I was on a family holiday in France when my period started. I had never experienced pain like it. It felt like someone was twisting a knife around in my lower back, and simultaneously punching me in the stomach, while tearing the muscles open in my right thigh. I couldn't sit up straight, I could only curl into a foetal position and pray it would stop. On the fourth day I could finally stand up straight.

And so it remains to this day. The first four days of my period I generally cannot stand up or walk. I have to be curled up in an almost self-protective position, take codeine that makes no difference at all, and blank my mind so that I don't add to the agonies with 'why me?' and 'this is awful', neither of which help.

I try to plan so that I don't have anything to do on the first four or five days of my cycle, but it's very irregular, and never works out as I intend it to.

The video above explains the medical side of things, but the personal cost to women is what concerns me particularly. I had surgery to diagnose the endo, but the treatment side of that did not make much difference to my symptoms. Hormone treatments lowered my mood dramatically, and I can't take the pill. I was offered a hysterectomy, but at age 21, as I was, I felt it was too radical a decision to make at that stage.

It took me 7 years from first going to my GP about this excessive pain, to getting a diagnosis of endometriosis. At the time, this was the average length of time for all women. There are numerous reasons for this, but they mainly centre around women and girls not being taken seriously when they complain of period-related pain. As mine started as a teenager, I was told I would grow out of it. I was told it would be fine once I'd had a baby. I was told that *everyone* gets period pain. My friends who had seen how ill I got knew that there was something different about my period pain compared to theirs, but I was unable to convey to the doctors that it was not normal.

For me, it took dragging myself to my GP on the first day of my period. She saw me, unable to straighten up, barely able to stand, and she picked up her pen and paper and referred me instantly to a gynaecologist. He did a laparoscopy, and sure enough, found endo, as well as some other problems too.

If you have any of the symptoms - extreme pain before, during or after your period, pain during sex, excessive bleeding, difficulty conceiving, ovulation pain, bowel or bladder problems, loss of large clots of blood, and other things which you know are not right in your body - go back to the GP and do your best to insist on a referral to a gynaecologist. I wish I could tell you that from there, all would be well, but 12 years on I am still in the same situation as when i was first diagnosed. However, some women do have success with treatments, so they are always worth a try. I get on ok, as long as nobody tries to make me move, or threatens to take my wheat pad away!

This week, be aware of your body. You know what is normal for you.

For further information, see Endometriosis UK, or the Endometriosis She Trust UK.

(Cross-posted at The F Word blog).

Sunday, March 06, 2011

Finding RSS Feed Links in New Twitter.

I've been trying to add some twitter things to my google reader today, and finding the RSS feeds for things is suddenly a lot harder, with new twitter.

So, for anyone else wondering, here's what I've got.

If you want to get the RSS feed for twitter search results, so you want the feed to register each new mention of a search term, you use this URL, http://search.twitter.com/search.rss?q=feminism but replace 'feminism' at the end with whatever search you want. Add that URL to your RSS reader, google reader, or whatever you use, and it should work.

The other thing I wanted was the RSS feed URLs for certain twitter accounts. These used to appear below the list of people the account was following, but not any more. Until you log out. So you have to log out, go to that person's account page, and the RSS feed link will be below the images of the people the account follows, in the right sidebar. Then, log back in and do whatever you were doing, but you have the feed URL now.

Hope that helps someone out! It's been frustrating.

Monday, February 28, 2011

We're doing it. Not sure what, but we are.

The person who says it cannot be done should not interrupt the person doing it. -Chinese proverb (via @charityideas).

I'm not normally one for such quotations, but I liked that one.

Headless.

Last night I dreamt that I died. After dying I then woke up again (in the dream). This made me suddenly scared of being buried alive, and as I knew that I was going to die again shortly, I asked that next time I died, that someone should decapitate me so that I couldn't wake up again.

I died again, and then woke up (in the dream) again. This time I had been decapitated but still woke up, as just a head. I started to fear that I would never die properly and stay dead. I also wondered how I would function in the interim, as just a head.

Then I woke up (in real life).

What the fuck does that mean?!

Tuesday, February 22, 2011

Just Because You're Paranoid Doesn't Mean They're Not Out To Get You.

The media rhetoric around, and the threatened government cuts to, disability benefits are filling people with fear. They are contributing to deep suspicion and even aggression from the general public towards disabled people, and lots of us are feeling more than a little petrified.

From Nadine Dorries' Shop a Twit campaign, to virtually everything put out by the Daily Mail, many disabled people are becoming scared to go out, to have occasional treats, to try something normally outside of their limits, such as walking a few steps, or to put their name to anything they post on the internet at all, in case someone should see them, report them for benefit fraud, and accuse them of 'faking it'.

Of those who have continued to post on twitter, despite previous threats, many feel more limited about what they can say, lest they are judged to be faking, scrounging, or wasting taxpayers' money. Still more are finding they feel they have to justify everything they say, just in case somebody is watching. And programmes like the BBC's Saints and Scroungers do little to help, either people's attitudes, or the overriding fear and paranoia experienced by disabled benefit claimaints.

So I was saddened, but not surprised, to see one person's response to this build-up of fear.
I started to worry that my heavy use of twitter could be used against me in this process. I have already explained how and why I can use twitter without that meaning that I am fit to work, but I also worried that my tweets could easily be taken out of context. For example, a tweet about undertaking an activity of some sort could be used as proof that I can do that all the time. What an investigator would not see is how good or bad a day I was having, how much I had to prepare for and work around the activity, or how much pain and exhaustion that activity would cause for days afterwards.

So Steven Sumpter, aka latent existence, took, "the drastic step of deleting all 12,272 of my tweets". All of them. And why? Fear. Fear they would be used against him. Fear that they would portray an image of him actually being fine. Now, I follow him on twitter, and it's not like he's endlessly talking of weekends away skiing and trekking up mountains, and decided he'd better suddenly get rid of the evidence. This is the twitter account of someone who is clearly not well enough to work. This is someone who talks about a good day being when they open their curtains 'without fleeing in pain from the light'.

This someone who nobody could accuse of faking it. Anyone with a chronic illness can recognise straight away that these aren't a series of made-up tweets by someone imagining what it might be like to be ill, and even so he felt so threatened by the current atmosphere of suspicion and attack, that deleting over 12,000 tweets felt like the only way forward.

But he's not the only one scared. It's not a paranoid or psychotic illness which is making him have these suspicions, some of the most mentally healthy people I know concur with him. And I want our progressive, equal society to take a look at itself, and wonder just how progressive and equal it is.

(Cross posted at Where's the Benefit? blog).

Sunday, February 20, 2011

Facts About My Impairments You Might Not Have Known #1

There are lots of aspects of disability which I talk about openly, and others that I never mention. Many I just take for granted these days, but I thought it would be good for awareness to share some of them.

So I'm going to have an occasional series of 'Facts about my impairments you might not have known'.

#1 I need artificial saliva in order to be able to swallow.

The TUC, March for the Alternative and Language Discourses which Promote Exclusion.

Two blog posts were brought to my attention yesterday that really merit a post each, but I don't currently have the capacity to do that, so they will have to share a space.

Firstly, an open letter to Brendan Barber, the General Secretary of the TUC, from Disabled People Against Cuts.

This letter is appealing to the TUC to work with them to make the March for the Alternative on the 26th March, more accessible to disabled people. They point out that
At the latest count it was found that disabled people were facing fourteen separate attacks against our lives and living standards as a result of the Coalition government’s policies. What we are witnessing is our human rights, supposedly guaranteed under the United Nations Convention on the Rights of Disabled People, being violated by regressive and draconian cuts to benefit and care funding.

and ask that disabled people are as " fully included in this march and rally as our non-disabled peers would take for granted".

Disabled People Against Cuts have clearly explained the numerous barriers to disabled people's participation in this event, and have as yet failed to get a response from the TUC about their suggestions of ways to improve access.

Given how horrifically the cuts ahead are going to affect disabled people's lives, it seems that we should be at the forefront of planning such protests, not ignored and sidelined.

The second is a post from My Political Ramblings about Welfare Claimants and the Discourse of Threat, and articulates really well the process of scapegoating, rhetoric and stigmatisation involved in making the cuts to disability benefits acceptable to the public. This is a really insightful and useful post, and is well worth reading.

**Edited to add, as I posted this, Lisa posted simultaneously that the TUC have now released access information. Please check her post for the most up to date information.**

(Cross posted at Where's the Benefit?).


Saturday, February 19, 2011

Open Letter to Proud Galleries

Dear Mr Proud,

I was dismayed to hear that today, your gallery refused entry to a woman who is a wheelchair user, on the basis that her wheelchair took up too much room. Your website boasts of 'some of the best press coverage in the country' and 'exciting, cutting edge and sometimes controversial' exhibitions, and states, rather ironically in the circumstances, that "Based upon a formula of exhibiting accessible shows around popular themes Proud Galleries instantly took the photography industry by storm".

How accessible is a show if a woman is not allowed to enter because of her use of a wheelchair?

As well as being deeply disrespectful and offensive, I am sure you are aware that this is also illegal under the Disability Discrimination Act. I see also that you have Mencap listed under your Sponsors, and I will be contacting them separately to ensure they are aware of this situation.

And
Dear Mencap,

Please find below an email I have just sent to Proud Galleries, who list you as a sponsor. I thought you would want to be aware of the situation.


**Edited to add. Since posting this message, @proudgalleries have posted the following tweet:
"Sorry for upset. We have 2 wheel chair access points, we open our doors to everyone. Capacity was reached, it was a 1 in 1 out policy to all."


Wednesday, February 16, 2011

Hate from the Government, Hate on the Street.

Today I went to an appointment, and afterwards, when I was almost home, a man who was coming from behind me shouted something. I turned to him and laughed and said, "that made me jump", and he yelled it again, but I couldn't work out what he said.

He crossed over the road and yelled the same thing for a third time, and I worked out that he was saying "fucking DLA stick". I said, "I don't know what you mean?" but as I was saying the words I realised that I did. He was implying that, as I walk with a crutch, I was faking a disability to receive benefits.

For the rest of the length of the street, he yelled 'fucking DLA stick' at me again and again. I felt very intimidated and frightened.

And I knew. I knew that it was caused, as well as by a nasty, nasty man, it was also caused by this:



and this:



and this:



and every other story by the government and the media portraying disabled people as lazy (see the photo in that final screenshot!) scroungers.

I do not need to justify my use of a mobility aid to a complete stranger in the street, never mind one who is flinging abuse at me. The thought that I would carry a big, awkward metal thing around with me at all times in order to claim benefits is just ridiculous. The realisation that this is what some people think, that's frightening.

If anything like this happens to you, remember that it is a disability hate crime. You can report it directly to the police, or through an intermediary such as Stop hate UK.

The war against benefit claimants is, sadly, proving more effective than ever.

(This was cross posted at Where's the Benefit? blog)

Sunday, February 06, 2011

What's a Life Worth?

Someone pointed me to a site called 5 Quid for Life,
a new charity-in-the-making, set up in January 2011 to support mentally ill people who may be adversely affected by changes to the UK benefits system.
and it made me so, so sad.

Set up in response to Aliquant's post about her plans for suicide if she is refused ESA,
to encourage people to give, ideally to commit to regular giving of £5 per month, to enable us to offer a life-saving safety net beneath the benefits system.

It made me sad, and then it made me angry. Not the site itself - the site is lovely, and caring, and a beautiful response to someone's utter despair. Rather, it made me angry that this is necessary at all. That anyone in this country in the 21st century saw a need to get strangers to donate money so that people with mental health problems can support themselves rather than kill themselves.

How has this happened? That we are under such scrutiny, and in a state of such terror, and so disregarded by the government, as well as the opposing party, that millions of us are at risk of homelessness and destitution, as some kind of punishment for being ill.

Any idea that once our benefits are stopped, we will 'buck our ideas up' will be proven again and again to be, at best, misguided, and at worst, downright dangerous. Threats of suicide are worryingly frequent in comments on this blog alone. Those of us with mental health problems are thought to be the most at risk of failing the assessments, which are reported to ask questions which are much less relevant to people with mental health problems, as well as other invisible disabilities.

One thing is for sure, the medicals, the reassessments, the regular hatred in parts of the media, the misinformation from the government, are all working together to make us more stressed, more depressed, more anxious and more paranoid. Therefore further and further away from the elusive 'wellness' which would enable us to start thinking about paid work and leaving the benefits system.

I am disgusted, and ashamed, to be in a country where people are having to hold collections in order that people will be able to eat. People, specifically, who are frightened, sick and vulnerable.

(Cross posted at Where's the Benefit? blog)

Saturday, February 05, 2011

Speech Kinda Recognition

To see whether resting my left hand is helpful, I am trying out the Speech Recognition Software which came with Windows 7, as one of my main problems with my left hand now is typing.

I'm getting the hang of it. It's quite slow and frustrating, but more usable than I thought. But this morning, for fun, I put the headset on the radio speakers. This is what it made of the end of the Today programme and the beginning of Saturday Live.
The newly down tweetdeck the will and reason the hon. what the implications there were four was the disposal up O golden retrievers and one daughter. In the there is week: Europe and in in Yemen which is odd because if you have a successful transition treatment of active written and directed by substantial movement even when we saw and heard more people will see what would not pursue the subject of women's institutes and you believed opposite the most people in each if the strings can be achieved peacefully will find that certain to fundamentally we wanted the by which people looking for an forbidden to leave them in length hair pub it's it's it's a victory since I was just as it is and what you think differs from review board and lodging use nine of the city believes it is written as a Munich this morning you'll also make clear the government's determination to confront 345 groups which promote Islamist extremism prime minister will argue that Britain needs a strong national identity to prevent people travelling to extremism the security minister reading of the chances accompanying Mr. Cameron speaking on today she said the government could deliver a leader of the was a widespread feeling in the country rather than with this united behind values of the need to be than there are things of the government's new computer given even encourage participation society we wanted we do that immediately give it a of and runners are talking about his opposition to been written by means all forms of extremism he just does not does not simply mean business are extremism he's been an explosion in an addiction gas pipeline you the border with Israel because of the but is not clear the pipeline supplies Jordan and Egypt and government ministers are talks are planned between the vice president of Muslim and of your position to consider a possible transitions are United States of the Irish President Mubarak to listen to the protesters were continuing continuing to demand his resignation after 11 days of protests on the streets of Cairo, Egypt and cities of British soldiers died in what's been described as an operational accident in Afghanistan he was serving with the first time in the royal Irish regiment and how much province his relatives have been informed ministers are expected to announce a relaxation of the voting. People who want a volunteer with children by government view of Labour's controversial racing and barring scheme is reported to have concluded that criminal record checks are necessary in many cases ministers are planning to restrict them to those who have intensive contact with young BBC News we hear about a growing adventure cross the Indian Ocean and struggled facilities time for Saturday Life with the driver of the to infinitive rewarding to Saturday nine what's this women and men in long enough in-line listening with four: she consistently been I couldn't walk through the or in only 52.9 stranger tweetdeck the the now familiar one to if
To on the programme is morning we meet him and his holiday in Ecuador Jupiter and the woman's weekly income young lady was among became her best friend step mum and dad is rinsed and became worse than that to get her into a diagram for whom we have inheritance tractor Barry Humphries and had a triple songstress Beth Orton and it's all after firsthand report is not healthy excite our libraries do degree which is why this is subtitled the only thing standing between us and a party recently lively and original library libraries shouldn't have to borrow time for a long line imagine your duty for a winner on 044 and one forgot the which I used during and after from 15 to go outside and see how ruled that the new one reason; it is recruitment and identity and as a TV presenter and wheelchair apparent in his Packwood Latin already is presented more than a dozen sports resort BBC and channel four in the workhouse give the


Thursday, February 03, 2011

Good Advice Matters

Someone drew my attention to a website called Good Advice Matters, which is a non-profit organisation dedicated to offering 'accurate and relevant information' on welfare rights.
We have many years experience behind us and specialize in disability and sickness benefits, appeals, benefits for foreign nationals, better off calculations, benefits for young people, benefits for carers etc.

Good Advice Matters supports the rights of individuals to claim the benefits that they are entitled to without experiencing judgmental attitudes, un-necessary delays and confusing and contradictory information. Good Advice Matters is frustrated with the lack of accurate information and advice currently being offered by the DWP. In short we feel that benefit claimants are being let down by the system.

Good Advice Matters is extremely critical of changes to the benefit system such as the introduction of employment and support allowance for claimants with limited capability for work and the planned cuts to benefits such as housing benefit. We have seen at first hand the devastating affect that a decision to stop benefit can have on an individual and we will actively campaign to ensure that claimants receive a fairer, more transparent and supportive service.
They invite people to contact them with any benefit query or question.

They have already answered one query about Is my Incapacity Benefit Safe? and under their DWP tag and benefit advice tag they have plenty more advice on benefits.

www.goodadvicematters.co.uk looks like it could be a really helpful resource for disabled people, regarding benefits and rights, especially as more, confusing and punitive changes come into law.

(Cross-posted at Where's the Benefit?blog).

Tuesday, February 01, 2011

Shhh!-In At Sheffield Libraries



Yesterday I read with dismay that the bundle of awesomeness that is Ian McMillan has been banned from a children's creative writing event for fear that he may make political comments.

He is a big fan of libraries, and has said “Libraries are a vital and irreplaceable part of a cultured and civilised society, and one of the few public places left where you don’t have to pay to get in.” Of course, he's quite right!

The story a few weeks ago of residents of Stony Stratford withdrawing every single book from their local library to fight its closure was thoroughly inspiring.

According to Library Workers For a Better Future,
In Sheffield it is being proposed that the present library budget of £8.5m should be cut by £2.5m by 2013/14, i.e. by £1.4m in 2011/12 and £550k in 2012/13 and 2013/14. There are no current plans to close libraries but cuts on this scale will inevitably have a major impact on the quality of the library service. As a campaigning organisation we are keen to work with the council wherever possible to highlight the good work that libraries do in our communities. This lack of cooperation on even such a simple thing as a children’s creative writing workshop leaves us with little option but to pursue other ideas...

The 'other ideas' they talk about are a 'Shhh!-in' at Sheffield Central Lending Library on the 5th February. That date is the national day of action for libraries, and at 11am at Sheffield Central Library, the following is proposed:
Shhh-In rules…

Finger to lips.

At 11am say ‘Shhhhh!’

Finish off with three cheers for the library!

Finally, borrow lots of books – lets empty those shelves. You’re allowed up to 15 out on your library card, so bring a big bag!
You can keep up to date with the campaign by following @lwfabf and the #shh4sheflib hashtag on twitter.


Monday, January 31, 2011

It's My Nerves!

I haven't written a personal blog post for aeons. But here we are.

I went this morning for an EMG and nerve conduction tests. I've had them before and it involves sending electrical impulses through you to see what your nerves are doing, then putting a needle into your muscle and sending electrical pulses through that as well. It pretty much is as unpleasant as it sounds, though the wire in the leg muscle wasn't as painful as it was last time.

The problem came when he tested my arms as well. This, I think, is supposed to be a way that they can compare the damaged nerves in my legs to nerves in my arms which are ok. But the nerves in my left arm are, it seems, not ok. He kept asking me questions about my left hand. Was I *sure* it wasn't numb? Was I *sure* it was ok. I eventually admitted that I have been having some trouble touch typing with it, and he did some sensation comparison things on both my hands and, sure enough, I have a loss of sensation in my left one. This was clearly showing up in the tests he was doing, which is why he was so insistent.

The thing that scares me is that the neurological problems started with my left foot and leg, then a few weeks later affected my right foot. Now it has affected my left hand, I fear my right hand will be next and then... who knows? I do know, from reading, that this does happen with neuropathy.

He didn't give me any results or analysis, he sends his results to the neurologist who will then go through them with me. But I'm more than a little depressed about potentially having hands as crap as my feet.

Later I went to see my GP to talk about the ongoing neuropathic pain from the site of my neurosurgery last February, and he has increased my gabapentin dose. I'm trying to be optimistic but it hasn't helped so far, and it has thoroughly foul side effects for a few weeks with each increase. I'm going from 1200mg a day to 1800mg a day.

And there's more, of course. There always is. But that will do for now.