You're Frightening Me

It started with a blog post, where David Gillon challenged 38 degrees about why, despite a disability benefit cuts campaign receiving lots of votes, it never reached the 'call to action' stage.

Then there was an article (now amended) which described an athlete's move from Paralympic to Olympic competition as a "move up".

I then read in Jezebel about a sex worker who is awesome because she works with disabled clients, which apparently makes her intriguing.

And I started to wonder, what do you think of us? Of me? In these three stages, the mainstream, and the left-wing, tell me that I am inferior, and I am other. So very, very other.

Then Lisa Egan wrote a post (trigger warning) about suicide, and her despair at the lack of support from even campaigning organisations, and I still, somehow, didn't cry.

Then, finally, the article that did make me cry, in which I learned that 2/3 of people avoid disabled people because they don't know how to act around us. In addition,

A third of those questioned demonstrated hardened negative attitudes towards the disabled. Reasons cited for this ranged from disabled people being seen as a burden on society (38%), ill feeling around the perceived extra support given to disabled people (28%), and the personal worries and sensitivities which rise to the fore during a recession (79%).

It went on,

Some 60% of Britons admit to staring at disabled people because they are different, with more than half of people (51%) admitting they feel uncomfortable when they meet a disabled person for the first time, with more men (54%) admitting to being uncomfortable compared to women (50%).

At a time when cuts are actually killing disabled people, we are also experiencing more negative attitudes, perceptions of being a burden, an additional cost, especially during a recession. How very inconsiderate of us to not wait to attain crippled status until the economy is fixed.

If you're questioning whether this is a feminist issue, then the point is being missed. I am a woman who 38% of people polled consider to be a burden. I am a woman who 2/3 of people polled admit to avoiding for reasons of prejudice. I am a woman who 50% of women polled admitted to being uncomfortable to meet. I am a woman who is witnessing her friends become more and more afraid to leave the house, for fear of government- and Daily Mail-inspired abuse in the street. I've experienced it myself.

There are so many issues at the moment which are putting us all into a state of crisis. This is one of many: people are starting to frighten me. Is the person I'm talking to one of the 38%? Or the 50% Or the 65%?

Given that women are the hardest hit by spending cuts, and disabled people are the hardest hit by spending cuts, disabled women are being overlooked, avoided, resented, marginalised and othered. It takes non-disabled people, at this stage, to make some of the changes that need to happen.

(Cross-posted at The F-Word and Where's the Benefit?)

[The image is a photograph of handmade print next to one of the stencils. They read "FEAR MORE HOPE LESS". The photograph and artwork are by Ben Murphy and are used under a Creative Commons Licence]

Divide and rule works both ways

When I complained about Julian Assange speaking at Occupy LSX, I was told I was being divisive. When I drew attention to zohra moosa and Chitra Nagarajan's experiences of racism at the same occupy camp, I was also told I was being divisive. Complaining about the Labour Party, about the Lib Dems, about rapes at other Occupy camps, about inaccessible feminist meetings, and about issues being ignored under the heading of #solidarity, all get me called divisive.

The idea is that if you complain about something, you risk dividing the movement, at which point the opposition - be it the patriarchy, the 'right', the rich, the government - can move in and rule. And I understand this concern. When a movement is struggling for a voice, the last thing it needs is the people within it arguing amongst themselves, instead of against the people they are uniting to fight.

However, there comes a point when supporting a movement whose ideology or aims you broadly agree with becomes one painful compromise too many. And if you speak up, the 'divisive' accusations pour forth. But in my daily, lived experience, the division does not come from me raising awareness, the problem comes from the issues arising in the first place.

Because if I cannot physically get into your occupy camp, it is not me who has divided the movement. There is a very literal division between the non-disabled people who can get in, and the disabled people who can't. And because if there have been rapes at your occupy camp, or your occupy camp produces a document telling anyone who is raped at the camp to not go to the police, it is not me who divides the movement by drawing attention to it, it is those who rape, and those who attempt to suppress legal redress against rapists who cause a division. And because if disabled people who can't leave the house spend hours and days and weeks live tweeting events to take part in, and raise awareness of, a demonstration, and then those same disabled people actually plead with the protesters to add benefit and social care cuts to their banners and chants, and are ignored at every turn, the division is being created by them, not me.

I understand that in a broad movement, gathered together ideologically but not always agreeing, compromises will need to be made. I am becoming less and less understanding, however, about how often the white, heterosexual, cis, non-disabled men are asked to compromise, in comparison to the rest of us. Because being called divisive is sometimes very similar to being silenced.

This was originally posted at The F-Word.

[The image is a black and white close-up photograph of a person's mouth, with piercing, with a finger held up against it in a 'shush' position. It was taken by Ko_An and is used under a Creative Commons Licence]

Today I will mostly be listening to

CSC Funk Band via freemusicarchive.org.

Procrastination Podcast and Book

Anyone who knows me knows that I am a chronic procrastinator. In an effort to improve this really stressful trait in my life I have been reading up and studying all about it, and one of the best resources I have found is the iProcrastinate Podcast. I have been listening to the whole back catalogue over the last couple of months, and trying to implement some of the strategies that Dr. Tim Pychyl recommends and explains.

Since my year in France, as part of my degree, I've always wondered why French people apparently do not procrastinate. They don't even have a word for it (dictionary said, "faire quelquechose demain qu'on devrait faire aujourd'hui" - do something tomorrow that you should do today). So, as Tim sometimes answers listener queries on his podcast, I decided to email him. To my very pleasant surprise, he responded quickly and has now made a podcast episode all about it.

I am very much looking forward to listening to it, and you should go listen too! Go on, it'll be good, I promise.

Tim has also written an awesome book, The Procrastinator's Digest, (also on Kindle for only a few pennies over £2!) and you can see his website here.

[The image is a photomosaic of 36 clocks. It was taken by Leo Reynolds and is used under a Creative Commons Licence]

Disability and Sexuality Resources

I have been doing some research on sex and disability, and thought I would share some of the links I have found. This will be useful for me in the future as a resource, and hopefully to others too.

Disability and Sex General Links

• Disability Dharma: What Including & Learning From Disability Can Teach (Everyone) About Sex
  
• How to Meet, Date and Have Sex When You're Disabled
  
• Sexual Pleasure & the Disabled Adult
  
• Disability and Body Image
  
• Sex and Disability
  
• Good Sex Positions for Disabled Sex
  
• Let's Get Physical
  
• Disability and Orgasm: Your Orgasmic Potential
  
• Practical Sex Tips for Disabled People
  
• No Big Deal: Sex & Disability
  
• Self-Advocates Speak Up About Sex
  
• Sexuality and Disability Myths and Facts
  
• Disabled and No Sexual Pleasure
  
• Sex, Disability and the DSP: Ethically Supporting Sexual Choices
  
• Sex and Disability: Impacts of Disability on Sex
  
• Sexual Expression for Adults with Disabilities: The Role of Guardianship
  
• Disability and Sexual Activity: The Mechanics of it All
  
• Contraception for People with Disabilities
  
• Disabled? Discovering Your Sexual Self
  
• Lesbian, Gay and Bisexual
  
• Talking About Sensitive Topics
  
• Personal Relationships and People with Physical Disabilities
  
• Physical Problems and Female Sexual Dysfunction
  
• Talking about Disability on a Date
  
• Lovers with Disabilities Become Liberated with Tantric Sex
  
• My Partner is Scared to Try
  
• Getting Assistance: Having Sex and Using Your Sex Toy
  
• Physical Disability and Sexual Intercourse
  
• A Sexuality Policy That Truly Supports People with Disabilities
  
• Two Lovers With Disabilities Need Help
  
• How to Meet, Date and "Do It" When You're Disabled
  
• Sex and Disability Webliography
  
• Eli Clare - Challenging Our Differences
  
  Sex, Disability and Young People
  
• Sex Education for Physically Disabled Teenagers
  
• Growing Up: A teachers's guide to Sex and Relationships Education for Young People with Physical Disabilities
  
• Sex and Your Child with a Disability
  
• Talking about sex and relationships: the views of young people with learning disabilities
  
• Sexuality Education for Children and Adolescents with Developmental Disabilities
  
• Sexuality and Persons with Disabilities
  
• Sexuality Meets Intellectual Disability: What Every Parent Should Know
  
• Sexuality and Cystic Fibrosis: Information for Adolescents
  
  Medications and Sex
  
• Sexual Side Effects of Medications: How prescription and OTC medications can have sexual side effects
  Effects of Medications on Female Sexual Response
  
• Researching Sexual Side Effects of Prescription Medications
  
• Sexual Side Effects of Prescription Medications
  
• How To Manage Sexual Side Effects of Prescription Medications
  
• Physical Sexual Side Effects of Medications
  
  Disability and Sex Toys
  
• Top 10 Ideas on Adapting Sex Toys
  
• Making Sex Toys Accessible
  
• Sex Toys and Disability
  
• Disability and Sex Toys
  
• Research Before Adapting Sex Toys
  
• Accessible Sex Toys
  
• Adapting Toys for Decreased Sensation
  
• Adapting Toys for Increased Sensation
  
• Fatigue and Sex Toys
  
• Adapting Toys for Mobility and Motor Control
  
• Paraplegic Sex and Quadriplegic Sex: Good Vibrations
  
• Adapting Sex Toys for Privacy
  
• Sex Toy Accessibility Checklist
  
• Adapting Sex Toys for Fatigue
  
• Sex Toys and Allergies
  
  Fatigue and Sex
  
• Sex and Fatigue: How Do You Stay Sexual When You Have No Energy for Sex?
  
• Sex and Fatigue
  
• Your Sex Drive With Fibromyalgia & Chronic Fatigue Syndrome
  
• Fatigue and Sex Toys
  
• Sex, Fatigue and Depression
  
• Adapting Sex Toys for Fatigue
  
  Multiple Sclerosis and Sex
  
• Multiple Sclerosis & Sex
  
• My husband has MS and doesn't like sex anymore. Why?
  
• My wife has MS and doesn't want to have sex anymore. Why not and what can I do?
  
• Multiple Sclerosis and Sexual Problems
  
• Top 10 Sex Tips for Men with Multiple Sclerosis
  
• Sex and Multiple Sclerosis
  
  Arthritis and Sex
  
• Love, Sex and Arthritis
  
• Sex and Arthritis
  
  Spinal Cord Injury and Sex
  
• The ABCs of Sex After Spinal Cord Injury
  
• Sexuality in Spinal Injury: The spinal cord injured female: Orgasm
  
• Sexuality in Spinal Injury: The spinal cord injured female: Fertility, Childbirth and Contraception
  
• Sexuality in Spinal Injury: The spinal cord injured female: Sexual Behaviour and Activity
  
• Best Sex Positions for Spinal Cord Injured Women
  
• User's Guide to the Paralyzed Penis: Sex after Spinal Cord Injury
  
• Paraplegic Sex and Quadriplegic Sex: Good Vibrations
  
• Sexuality in Spinal Injury: the spinal cord injured male: Erections
  
• Sexuality in Spinal Injury: the spinal cord injured male: Ejaculation, Orgasm and Coitus
  
• Sexuality in Spinal Injury: the spinal cord injured male: Sexual Drive and Activity
  
• Intercourse & Pleasure With a Spinal Cord Injury
  
• Sexuality and Fertility - Impact on Men with SCI
  
• Sexuality and Fertility - Impact on Women with SCI
  
  Cancer and Sex
  
• Cancer and Sex: How Cancer Affects Your Sex Life
  
• Intimacy and Sexuality for cancer patients and their partners
  
  Diabetes and Sex
  
• Sex and Diabetes
  
• Diabetes and Sex: Does It Have to Doom Your Sex Life?
  
• Sexuality and Diabetes
  
• Erectile Dysfunction Treatments for Patients with Diabetes
  
  Fibromyalgia and Sex
  
• Fibromyalgia and Your Sex Life
  
  Parkinson's Disease and Sex
  
• Parkinson's Disease and Your Sex Drive
  
• Parkinson's Disease and Sex
  
  ALS / Lou Gehrig's Disease and Sex
  
• ALS & Your Sex Life
  
  Learning Disabilities and Sex
  
• Talking about sex and relationships: the views of young people with learning disabilities
  
• Sex and Learning Disabilities
  
• Sexuality Meets Intellectual Disability: What Every Parent Should Know
  
  Ostomy and Sex
  
• Sex and the Person with an Ostomy
  
  Continence and Sex
  
• Continence and Sex
  
  Cystic Fibrosis and Sex
  
• Sexuality and Cystic Fibrosis: Information for Adolescents
  
• Sexuality, Fertility and Cystic Fibrosis: Information for Adults
  
  Back Pain and Sex
  
• Sex Tips for Back Pain Sufferers
  
• Ways to Enjoy Sex While Helping Your Back
  
  Augmentative and Alternative Communication and Sex
  
• Promoting Healthy Sexuality and Safeguarding in Youth who Use Augmentative and Alternative Communication (AAC)
  
• Sexual Health Education for AAC Users - Speak Up Findings
  
• Promoting Healthy Sexuality and Safeguarding in Youth who use Augmentative and Alternative Communication (AAC)
  
• Sexual Health: Knowledge and Skills for People who Use AAC
  
• Sexual Health Issues for People who Use AAC
  
  

A well-loved man.

Earlier this year, a friend of several of my friends died. He was young, and the circumstances were tragic and, at the time, somewhat newsworthy. But the news media can all too easily lose sight of the very real grief and sadness surrounding someone's death, by getting caught up in the 'story'.

Some months later, and this 'story' has re-appeared in the local news, because his inquest has taken place. The real loss facing his friends and family has been overlooked in favour, yet again, of sensationalised details of his death.

Because he died by suicide, even more care than usual should be taken when reporting his death. According to the Press Complaints Commission's Editors' Code of Practice, "When reporting suicide, care should be taken to avoid excessive detail about the method used.". This is also backed up by the Samaritans, who say that

certain types of suicide reporting are particularly harmful and can act as a catalyst to influence the behaviour of people who are already vulnerable.[...] Research suggests that media portrayal can influence suicidal behaviour and this may result in an overall increase in suicide and/or an increase in uses of particular methods.

They also specifically advise the media to "Avoid explicit or technical details of suicide in reports".

On a more personal level, this man's friends and family are devastated at his loss. In particular, it is felt that reports like the one in today's Star not only dramatise a tragic situation, they also ignore that this was a person who was loved, and whose life amounted to so much more than what was portrayed. In addition, the mention of his child is worded in such a way that his friends are concerned that this could cause her to blame herself for his death when she is older.

This man died because of depression, and responsible reporting should include information on how people who are feeling depressed can seek help. Ethical reporting should refrain from including unnecessary, distressing details of his last moments. And respectful reporting should take into account the feelings of those who loved him, who will read this news report with a pain that is difficult to describe, but devastating to experience.

I did not know this man, but have seen similar newspaper reports on the suicides of two of my friends, so I know this pain well.

Disabled people occupy the UK / Occupy Sheffield access info

While I hadn't been able to join an occupation on a Sunday, I went to my local occupation this afternoon and spent an hour or so there drinking tea and putting the world to right. What follows is not an in-depth access survey, but is rather the impression I got, based on the information I was told or observed.

The Sheffield Occupation is in front of the Cathedral, so trams and buses stop nearby. It is on a flat courtyard and while there are some steps to access it from some directions, there are sloped alternatives alongside them.

The Occupy Sheffield has one portaloo, which is not accessible. The local Quaker Meeting House is offering the occupiers use of their toilets, and they do have wheelchair accessible toilets on each floor (with lift access to each floor). Once they close from 9pm - 9am, use of the portaloo begins, excluding many disabled people from using it.

The closest Changing Places toilets to the site are at Sheffield Town Hall and at Ponds Forge Sports Centre.

They have generators for electricity, but try to only use these at night. They also have gas heat, which is basic. If you need electrical power for any of your equipment, this could be problematic at the Occupy Sheffield camp. If you have a need to keep warm that would go beyond wrapping up really well, then again it may be an inaccessible protest for you in that respect too.

There is a good supply of food and hot drinks. I was the only visibly disabled person at the camp when I was there, but talked to a man who was a mental health service user. Another disabled person had clearly been at the camp at some point too. This photo is of a piece of paper taped to the main tent, which reads "I am one of the few disabled people who has a job. I am mad about what our society has become. I am the 99%".

The photo at the top of the post is of the main tent. It has a large banner on it, reading "Occupy Sheffield", and another fabric banner reading We Heart NHS. Both were taken by me.

There is a lot more I could say about the experience at #occupysheffield and maybe I will, but for now, this is a very basic accessibility survey for the site.

What I've Been Up To

The main thing I've been up to is setting up a massive database to link feminists on twitter with similar interests. It's been a lot of work, but 258 people have already signed up and filled it in, and that's in 24 hours!

If you are a feminist on twitter, fill in the form, then find others on the spreadsheet. See my blog post about it here.

Other things I have been doing, have been:

• a post about LaDIYFest Sheffield at The F-Word
  
• a post about the renewed Michaela Hague murder appeal at The F-Word
  

My favourite things today have been this video, and this news story.

As usual I'm on twitter as me, and my writer / social media self is also there @PhilippaWrites. There will be more news on this in a few weeks. I also run the F-Word twitter account and sometimes post from Where's the Benefit? account too.

And I may as well list everything while I'm at it, eh? So you can see the daftness I post on tumblr, find me on google+ and on Linked In.

Not In My Name.

Yesterday I wrote about why Workfare is exploitative and unfair, especially for disabled people. Today I want to talk about something insidious and disturbing within the plans for rolling this system out, and this is the details of who stands to benefit.

Firstly, there are big companies who have signed up, unsurprisingly, to get people to work for them without a need to pay them, such as Poundland, Matalan, Tesco and Primark.

Secondly, there are public sector organisations who want to benefit from unpaid labour, such as the local councils of Barnsley, Blackpool, Bromley, Chester, Dudley, East Riding, Gateshead, Greenwich, Hartlepool, Islington, Kensington, Medway, Neath Port Talbot, Newham, North Lanarkshire, Northumberland, Portsmouth, Renfrewshire, Stoke-on-Trent; numerous further education colleges; and several NHS trusts.

And thirdly, and perhaps most disappointingly, is the depressingly large number of charities and third sector organisations who are seeking to benefit from people being forced to work without pay, at threat of loss of their benefits.

Just some of the organisations who the DWP state will be involved in delivering the Work Programme, are:

Action for Blind People
Autism West Midlands
Disability Information Bureau
Disability Works*
Enable
Hammersmith and Fulham MIND
Leonard Cheshire Disability
Papworth Trust
Remploy
RNIB
Rochdale and District MIND
Royal Mencap Society
Royal National College for the Blind
Scottish Association for Mental Health
Shaw Trust
The Mind Consortium (Hull and East Yorkshire MIND)
Warrington Disability Partnership

These are the organisations from the list that stood out to me as disability organisations. Organisations ostensibly to represent and fight for the rights of disabled people.

Last year I wrote about Disability Works, a "collaboration of national third sector disability organisations including Leonard Cheshire, Mencap, Scope, Mind, Action for Blind People, United Response, Pure Innovations, Advance UK and Pluss". I argued in May that the Hardest Hit organisers could not represent me or fight for my rights when they also stood to benefit from the proposed changes in welfare reform.

Now Disability Works are amongst all of the above voluntary sector disability organisations who are seeking to benefit from workfare. Along with all the other charities above, and with all the problems Workfare will cause for disabled and non-disabled people, we simply cannot trust these organisations to have our best interests at heart. They, along with Primark and Tesco, aim to profit from labour which is unpaid, unfair, and is carried out against a threat of a loss of benefits.

These big disability charities do not represent me, they do not have my interests in mind, and they do not speak for me.

Not in my name.

See also:

• Boycott Workfare
  
• Bandits of Welfare to Work Program
  
• Benefiting from workfare - 'It's exploitation and it's repellent'
  
• As promised workfare on its way

Elsewhere Today

Things I have done elsewhere today:

• Cuts Kill. Again. at Where's the Benefit?
  
• Women firefighters to lobby MPs tomorrow at The F-Word

And others' posts I have liked elsewhere:

• When 'accessible' is not acceptable at Disability Horizons
  
• A user guide to falling over from BBC Ouch
  
• Ready for Work? That'd be an "it depends" from purplepersuasion

Workfare: Exploitative and cruel, especially for disabled people

Some disabled people are completely fit for work, but cannot find any, so claim Jobseekers' Allowance. This is particularly an issue because disabled people face many barriers to work, including inaccessible workplaces, employer prejudice and employers being ignorant of, or refusing to adhere to the Equalities Act in relation to reasonable accommodations.

Increasingly, however, disabled people who are not fit for work are finding themselves claiming Jobseekers' Allowance, when they are reassessed and fail to meet the limited criteria for ESA. The result of this is that more and more people are signing on, but also unable to work, for health reasons.

The Guardian has published a press release from the DWP, which states,

People who have been unemployed for more than two years and haven't secured sustainable employment could be referred onto compulsory community work placements under plans being considered by the government.

Under the proposals people who have been supported intensively through the Work Programme for two years yet have still not entered sustainable employment, may have to do community work or ultimately they could lose their benefit entitlement.

Ministers believe a minority of jobseekers struggle to engage with the system fully, are unable to hold down a job and therefore require a greater level of support.

The government is to test compulsory community work coupled with more intensive support through Jobcentre Plus in four key areas ahead of rolling out the scheme
nationwide in 2013.

This is fundamentally unfair. We are in a position as a country where unemployment rates are rising, and job opportunities are shrinking. If someone has failed to get a job in 2 years, it is most likely to be due to circumstances outside their control, and to then force them into unpaid labour, against the threat of losing their pittance of an income from JSA, is exploitative.

For disabled people, even moreso. People who are disabled but genuinely fit for work will still require adaptations, accommodations, and accessibility. These people are less likely to have found a job in 2 years because of the reasons I explained above. And will the people who are happy to take unpaid labour also be happy to accommodate people with complex needs and requirements?

And those who have been found fit for work but are, in fact, not at all fit for work, will be in the most trouble. All of the above, on top of not being well enough to do it. Will their regular sickness absences or inability to be reliable cause them to lose their benefit entitlement? I would imagine so, according to what the press release says.

Workfare is exploitative and unfair to everybody who is forced to do it. For disabled people it has added layers of unfairness, which have the potential to leave, yet again, the most vulnerable abandoned without financial support.

Cross-posted at Where's the Benefit?. Thanks to @m_s_collins for prompting me to write this.

[The image is a black and white photograph taken at a protest in New Zealand against a Workfare programme. There are numerous people with placards saying, "The rich get rich at the expense of the poor" and "Real jobs not workfare". It was taken by SocialistWorkerNZ and is used under a Creative Commons Licence]

Miss you, Dad.

There's nothing I wouldn't do to hear your voice again.
Sometimes I want to call you, but I know you won't be there.

Are you looking down upon me? Are you proud of who I am?
There is nothing I wouldn't do to have just one more chance
To look into your eyes and see you looking back.

On Eamonn Holmes and Unexpected Allies

When, like me, you're a left-wing feminist blogger, and you get an email saying, "Oh my God you're in the Daily Mail", the automatic response is to expect the worst. I had an idea what it would be about, because I had done some interviews with journalists about the story I broke about Eamonn Holmes saying to a girl who had been raped, "Well, I hope you take taxis now".

The tweets I had initially sent about him saying it had been retweeted hundreds of times, and I had had lots of support for what I had written, but what on earth would the Mail have to say about it...?

Well, it turns out that they weren't mocking my feminism, or defending Holmes' comments. In fact, they quoted me in a broadly sympathetic article. So next came the Daily Telegraph. The same thought process. A panicky click through... also sympathetic, with quotes from a telephone interview I had given as well as the blog post.

Then aol lifestyle, and unreality primetime, and this morning even The Sun.

It's certainly been a weird 24 hours. I won't be recommending the Mail, Telegraph or Sun for their feminist content any time soon, but I'm certainly pleasantly surprised that I've been quoted in them all, and not in a horrible way.

Recent Things...

Some of the things I have been up to lately.

• I co-wrote a blog post at The F-Word with Helen G, Jess McCabe and zohra moosa, about Julian Assange speaking at #occupylsx: We are the 49%?
  
• Marks and Spencer were only marketing their astronomy toys to boys. I wrote about women in astronomy, and their quick response to correct their mistake: Reach for the stars, girls
  
• My post, It's World Mental Health Day, so stop stigmatising my pills, was picked up by Gender Focus, in their round-up post
  
• It was also mentioned, and quoted (squee!) in Society Guardian's World Mental Health Day round-up
  
• This morning I saw Eamonn Holmes say to a rape victim, "Well, I hope you take taxis now". So this afternoon I blogged about it at The F-Word: Victim-blaming on daytime TV

[The image is a photograph of dozens of brightly-coloured sweets in the shape of flowers.]

It's World Mental Health Day, so stop stigmatising my pills.

Today is World Mental Health Day, and amidst the stamping out of stigma and awareness raising there is also a loud and pervasive perpetuation of misinformation. I've already been asked to give money to people 'at risk of mental health', for instance, when mental health is surely the goal - mental ill-health is where it becomes problematic. I've certainly never been asked to donate funds to fight physical health.

Mental ill-health has characterised much of my life, and is frequently far more incapacitating than my physical impairments. I've taken psychiatric medications for 17 years, and that's unlikely to change any time soon. I'm not overjoyed at the sheer range of pharmaceuticals I swallow every morning and evening, but it is far from the most significant aspect of my mental distress. So why do so many people focus on the pills as the problem?

For instance, as part of World Mental Health Day awareness on twitter, a study telling me that women's use of antidepressants is at crisis point keeps appearing. In this, Platform 51's director of policy, campaigns and communications Rebecca Gill, said:

"These shocking figures reveal an escalating crisis in women's use of antidepressants"

I appreciate that their study goes on to explain that they are criticising the practice of prescribing antidepressants in the absence of any other psychological support, the frequently highlighted statistics like, "A quarter, 24%, of women on
antidepressants have been on them for ten years or more" serve only to stigmatise people like me.

Rebecca Gill goes on to say,

"Worryingly, our research suggests that there is still a huge stigma attached to mental health problems. With 1 in 5 not telling their families and 1 in 10 keeping it a secret from their partner, it is clear that women fear they will be judged on the state of their mental health",

seemingly without the awareness that scare statistics about antidepressants contribute to that stigma. Their chosen headline is not that rates of women in mental distress is at crisis point, rather our use of antidepressants to cope with it.

Antidepressants are not the enemy. I agree that appropriate psychological support should be more widely offered, and that medications should be reviewed regularly. However the problem is not with the pills. The problem is the world we live in that makes so many of us despair enough to seek medical help to manage it. It's with the levels of rape, domestic violence, female genital mutilation and sexual abuse that can make live unbearable for so many. World Mental Health Day should not be 'celebrated' by stigmatising us for coping in whatever ways we can.

[The image is a photograph of many different medicinal pills and capsules. It was taken by e-Magine Art and is used under a Creative Commons Licence]

Things that are not like rape *Trigger warning*

Trigger warning: this post talks about the language and reality of rape. All of the links do the same. Please progress carefully.

This morning, Johnny Depp is reported to have said, when talking about being in a photo shoot,

"Well, you just feel like you're being raped somehow. Raped ... It feels like a kind of weird -- just weird, man. But whenever you have a photo shoot or something like that, it’s like -- you just feel dumb. It’s just so stupid."

In doing this, he portrays an increasing cultural acceptability of comparing rape to things that are not at all like rape.

For instance, a few months ago, Netflix in the US increased their prices, and BuzzFeed collated some of the 'most outrageous netflix price increase reactions': 7 of the 24 accuse Netflix of raping them. Similarly, a writer having their words stolen does not constitute rape. Countering this misuse of the word, Angela B says,

If your copyright is infringed...

...you may not even know it happened; once you know, not much changes for you.
...there are clear legal remedies and an enforcement arm that is usually willing to do its job.
...people believe you.
...no bruises, pregnancy, STDs or other physical repercussions.
...nobody takes the side of the infringer.
...nobody asks what your article was wearing.

Cara at Feministe and Sady Doyle have written about a man describing the development of a TV show as being like rape; podcasts talk of ear rape; there is a type font available called date rape; there is a different kind of font rape; instant messenger rape; AIM rape (different from IM rape, apparently); instructions on how to facebook rape your friends, and a website with examples; and on and on and on. You get the idea.

There are two main issues with using the word rape to describe things that are not rape. The first is that it devalues the word and desensitises us to what it means. If someone has just been facebook raped, it might not mean that much to them if their friend is actually raped*. Not if, over time, rape is consistently used to mean price rises, annoying pranks, loud noises and blog posts reprinted without permission. It takes the impact out of the word, when the crime of rape can have an unbelievably significant impact on a person's life. Angela Rose, from PAVE, said,

"The more we dilute this word, the more we play down the power of sexual violence. It actually adds to the silence surrounding this issue because it diverts attention."

Mikki Halpin goes on to say that

"This demoralizes victims, whose traumatic experience is now ranked along with a poor performance review or a hefty cell phone bill."

The other danger is that of triggering rape survivors. Not only can we see our experience being demeaned by the misuse of this word, but the way it is casually thrown about can trigger flashbacks, nightmares and trauma. Many rape survivors have the symptoms of Post-Traumatic Stress Disorder (PTSD). A PTSD trigger can be many things, including a sound, a smell, a memory, a word... This website talks specifically about PTSD in rape survivors.

thingsthatarenotrape.tumblr.com lists 'Forty-nine things that are not rape and one that is'. Number 50: Rape is rape.

Edited to add: I appreciate that I might not have worded that particular sentence as well as I might have, to convey the meaning I intended. I was talking about the verbal impact of the word, and I was thinking about it from the point of view of the person who has been raped. As I may have expressed it badly, I will present an alternative now: If you have been raped and you want to tell somebody, and they then tell you they have just been facebook raped, it may well put you off because it might lead you to believe that they did not have an understanding of what being raped actually meant, if they were happy to use the word in that way. I apologise that that was not clearer.

[The image is a photograph of a traffic STOP sign, which has been subvertised with a sticker of the word 'rape' underneath it. It also has two other stickers on it, and is above a traffic 'all-way' sign. It was taken by Nigsby and is used under a Creative Commons Licence]

Wearing a pair of tottering heels...

I remember noticing, as a child, that when the then Prime Minister Margaret Thatcher was in the news for having met with one foreign official or other, the report frequently went along the lines of, "Mr X was keen to strengthen relations with Britain, and Mrs Thatcher looked very fetching in a blue suit and matching handbag". I didn't understand why she had gone into these clearly very important meetings with no views or policies or corners to fight for, so instead the reporters had had to resort to describing what she wore. I didn't realise that it was a flaw in reporting, it was a flaw in society that meant that even the most powerful woman in the country was judged more on her appearance and her attire than what she said.

Now, to say that I am no fan of Thatcher would be a vast understatement, but it was unfair that she was represented in this way purely because of her gender. I was talking about this very thing last week, how we laughed, remembering the good old 80s and its chauvinism.

Then today, while scanning the twitter feed for the Conservative Party Conference, a headline caught my eye: Baroness Warsi ignores 'anti-Ed ban': Wearing a pair of tottering heels, Sayeeda Warsi stomped on Ed Miliband and his rhetoric at conference last week.

The feed in question was moving fast, so as I clicked on the link I assumed I had misread the subheading, but sadly I had not. Baroness Warsi's shoes were apparently so notable that a report on her conference speech had to mention them in the subheading, and the article itself.

I haven't yet noticed any reference to the shoes of the men who have spoken at the conference. William Hague is talking as I write this, and I have no idea what he is wearing on his feet. Which is either slack reporting, or proof that footwear isn't in fact that important in political oratory.

[The image is a drawing from marker and colored pencil, of a red shoe accented with pearls, large pearl jewel and gold braided trim. It is by erichazann and is used under a Creative Commons Licence]

17 Cities to Take Action Against Atos and Government's Welfare Policy Tomorrow

A press release from Benefit Claimants Fight Back:

Towns and cities around the UK will see protests tomorrow (30th September) against Atos, the IT Company responsible for carrying out the con-dem government's Work Capability Assessment. As part of a National Day of Action Against Atos, organised by disability, claimant and anti-cuts activists, people will be gathering outside Atos' offices in Edinburgh, Leeds, Manchester, Nottingham, Brighton, Chatham, Cheshire, Birmingham, Glasgow, Hasting, Norwich, Oxford, Bristol, Chester, Plymouth, Sheffield and York.

In London a demonstration is being held outside the BMJ Careers Fair where Atos will be exhibiting in an attempt to recruit doctors to work on their Disability Assessment teams. Thousands of people have been denied or stripped of vital benefit because of decisions made based on Atos' assessment procedure which involves a short interview and a computer based test. Many people have had conditions worsened, either by being forced into the workplace, having much needed money withdrawn or the stress of the assessment process, which has been described as relentless. Sadly some have taken their own lives after hearing of Atos and the DWP's decisions to remove their benefits. Even people with cancer and other terminal illnesses have been deemed 'fit for work'. The government has pledged that this form of testing will be extended to all disability and health related benefits.

This week over one hundred groups and individuals signed a letter to the BMJ and the RCN urging them to stop allowing Atos to recruit at their events and in their publications.

An online protest will see companies and organisations which do business with Atos contacted and informed of this company's 'callous and cruel' treatment of disabled and sick people.

Supporters of Disabled People Against Cuts have said that "As long as ATOS continues to treat disabled claimants little better than animals they will continue to protest against them and seek means to discredit them."

This entry is cross-posted at Where's the Benefit?

[The image is a photograph of a blue sticker which reads "Feel the power of the disability vote". It is from an American disabled people's campaign, but is just as relevant here.]

Web Accessibility for Designers #a11y

Posts Elsewhere

I've written a few posts that I haven't cross-posted here in the last week or so. They are:

• #WRB Twitter Summary of Welfare Reform Bill in the Lords at Where's the Benefit?
  
• "Oh my god. You're that nurse from Casualty!", and other things that should never be said during a smear test, and
  
• "Oh my god. You're that nurse...": Smear test post part 2, both of these at The F-Word.