Vlog Message to You.

In response to the wonderful words of BendyGirl.



[Edited to add a transcript of the video:

The last few days I've watched the videos from BendyGirl at Benefit Scrounging Scum, and I loved them, I thought they were brilliant. But I never thought it was something I could do, until in her second video she pointed out how important it is for everyone to speak out.

Like many, many people I am frightened by the proposed changes, the cuts, to disability benefits, and what's going to happen to services and the third sector.

The thought of withdrawing mobility rate... the thought of withdrawing the mobility section of DLA for people in care homes is disgusting. The thought that just because somebody was living in a care home, they no longer need to go anywhere, they no longer need mobility equipment, is just obscene.

The changes in housing benefit rules so that people under 35 in private rented accommodation can't get full housing benefit if they live on their own is disgusting.

And limiting ESA to one year, when so many people were fighting against the very principle of ESA at all, and now to have to change that fight to at least, it was perhaps better than nothing, and if people are going to be put on it because they are considered fit to work, even though we know that many, many people who are not fit for work are being put on ESA, the fact that that's now limited to one year, and nobody seems to know what would happen after that.

When we are in a recession, and people – everybody who isn't working is finding it difficult to find jobs, and the strange assumption that the few jobs that there are will go to disabled people, is just not unfortunately how this society works. Disablism means that disabled people are discriminated against every day, and that includes the disabled person who is well enough to work can find it more difficult to find that job because employers are frightened, or don't want to make changes, or don't know what it means.

I'm frightened. And I'm also, like many other people, very confused. I watched the budget on Wednesday, and I was thankfully using twitter at the same time because there were many aspects that I didn't understand, or that I thought I must have misheard. And that there was a group of us all watching and using twitter at the same time made it more accessible to me, I guess.

But there are many unanswered questions. I've heard of people ringing the DWP to say, 'What's this about ESA being stopped after a year?' and the DWP not being able to answer, because they don't know.

The Housing Benefit cuts, I've heard so many different stories about who it's being cut for. So it's not just that the changes are frightening, it's that they're very unclear, and people don't know where they stand.

When I first became ill and went on benefits, I just got Income Support, and it was a horrible time. With paying part of my rent out of that, and with making debt repayments out of that, I had £15 a week for food, and electricity, and transport. For months I lived on... I used to buy these tins of Irish Stew from Kwik Save, and they were disgusting, but they were really cheap, and I figured it was as close to a balanced diet as I could get because it had meat and potatoes in it. And for months, every day, I had one meal a day, and that consisted of Kwik Save Irish Stew and as much bread as I could eat. Every day. For months. I couldn't afford sanitary towels, I couldn't afford shampoo.

I didn't know about other benefits. And someone told me about DLA and I applied for it, and I eventually got it, and it was one of the key... it was key for me, it was vital. Because my health was bad enough anyway, it was vital for me because I could afford to eat more than Irish Stew. I could afford to go to places on the bus. And I'm talking medical appointments. Before that I was missing medical appointments because I couldn't afford to get there. I could get taxis. I could get ready meals when I wasn't well enough to cook.

Getting DLA literally changed everything for me. And makes, still makes, such a difference. It means that I can afford the extra things I need because I'm disabled. Like taxis. Like ready meals when I can't cook. Like mobility aids, and other aids I use. DLA, along with everything, is being threatened. With ATOS taking over the medicals. And after what they've done with the ESA medicals that's frightening, and many people who need DLA are going to lose it.

Everything that is happening since the new government came in is frightening to disabled people. And I'm not a Labour supporter. I know that various important Labour politicians have come out and said that they would be doing what the Conservatives are doing with regard to disability benefits. So I'm not falling into the trap of saying, 'the coalition government is awful, Labour is the answer', because they are... although they are fighting some aspects of the budget, they are supporting the disability benefit cuts.

I feel like I'm being punished for being disabled. The press and the government are doing a really good job at the moment of whipping up hatred, whipping up this image of disabled people being scroungers, of disabled people not really being disabled, and being workshy and lazy. The government and certain parts of the press are promoting this strongly and I can feel, in the atmosphere, that this is affecting people's views. And with the further cuts, this gets worse and worse.

What depresses me is not my illness. What depresses me is not my impairment. What depresses me is how I am treated because of it. That's what makes everything so much harder. We do need to speak out. Because disabled people are being scapegoated and it's horrible. And for non-disabled people, you don't know what's round the corner. I became disabled. Many people become disabled. It could be you in a few years, with no care packages, with no benefits, with no support. With people thinking... with people thinking you're lazy or can't be bothered, or exaggerating. Nobody's immune from disability. And there are some people in the government, the Prime Minister included, who really should know that through their own lives. I am so... I'm frightened, and I want to give a message of hope, but at the moment it's hard to find one.

So I'll agree with BendyGirl that the hope... maybe we have to get hope from each other... from knowing it's not just us, it's not just me that's frightened, it's not just me that's confused, who doesn't know what's happening and what's going to happen.

We're all in this together.]

An Easy Way to Email your MP to Protest Benefit Cuts.

Scope are running a campaign to email your MP to ask them to take action immediately to oppose the cuts to the public services and benefits that many disabled people in the UK use and rely on.

All you have to do is fill in your contact details, then your MP's email address is automatically found and you can read and alter the proposed message before you confirm that you would like it to be sent.

So, email your MP to protest the proposed cuts here.

Cross-posted at Where's the Benefit?.

Threats and Fear.

It's impossible to overstate how terrified some disabled people are, in Britain right now.

The fear of benefit cuts is so high, and so real, and attitudes like those of Nadine Dorries add to the climate of terror.

Already people are scared to leave their house for fear of being reported to the DWP for faking their illness, now those who find networks like twitter to be a lifeline are becoming frightened to post.

If you are stuck in bed, and you've found a way to use your laptop lying down, or you can use a phone or iPad, sites like twitter are perhaps the only way for many to actually communicate with others. It may be the only conversation someone has for a week.

One purpose that these threats serve is, I suspect, to keep us all quiet. We can't complain about the process of reapplying for DLA, or of the ATOS assessments, if the very complaints we type will be used as an additional stick to beat us with. Even if typing those 140 characters used up so much energy that we then had to sleep for an hour to recover. Or hurt our eyes so much that we have a migraine for 3 days.

On days that I can't leave the house, and can't use the phone, the internet is the only tool I have to communicate with the outside world. I don't want to lose that. But the fear affects me as much as anyone, and right now so many of my outlets feel threatening.

This is what the threats to disability benefits are doing to me. It is worsening my madness significantly, which, ironically, will make me less and less able to work, not more.

(cross-posted at Where's the Benefit?)

Being Offensive To Show How Offensive Offensiveness Is

The Press Complaints Commission has upheld Clare Balding's complaint after AA Gill in the Sunday Times referred to her as a 'dyke on a bike'.

This is really good news.

Balding said the word "dyke" was "too often used as a pejorative and insulting term". She said her sexuality was irrelevant to the programme and the hurt had been compounded by the columnist's mock apology for previously saying that she looked "like a big lesbian".

As you might expect, Stonewall has released a press release on the judgement, however it has used offensive and racist language in that press release to make its point.


Using racist language, to highlight how bad homophobic language is, is never the way forward. Holly's post on Oppression Olympics explains this clearly, and insulting Meera Syal and Vanessa Feltz's ethnicities is as offensive as the original AA Gill comment. Doing this in the guise of supporting a decision against offensive language is ridiculous.

I don't want to directly quote the language they used, but the screenshot above of the press release will show you what they said. The 'P' word in particular is one which makes me feel sick. Using it as an example of what The Sunday Times would never have said is misguided at best, and I do wonder what Ben Summerskill was thinking when he thought this was appropriate.

There is an option to comment on the page of Stonewall's press release, and if you too find these references unwise and offensive, I would recommend you do so.

Story originally heard through @becksydee. Photo by me.

(cross-posted at The F Word)

Spam Comments

I've lately started getting a lot of spam comments on my old posts, so I've been deleting them as they come in (Hint to spammers, don't bother writing a convincing looking comment for the context when your username is GenericViagra).

But as the problem is getting worse by the week I have now changed my settings so that comments left after a post has been up for 14 days will have to be moderated. Hopefully this won't be too annoying for regular or legitimate commenters, and it will save me time and energy I could better spend, I dunno, pissing about.

CAB Report on the Coalition Budget 2010

The Citizens Advice Bureau has written a report on Key welfare changes and their impact on low income households.

It makes for very depressing reading, and while it does not look specifically at disability benefits, it reports on the reductions and changes in Housing Benefit, JSA and tax credits, all of which are claimed by many disabled people. For instance,

From 2013/14 any claimant on JSA for more than 12 months will have their HB entitlement cut by 10 per cent. This will continue until they have “left the benefit system and been in work for a while”.
This seems a crude measure as it appears that it will apply even where the tenant is fully complying with their JSA requirements to actively seek work. The cut will fall hardest on those who face disadvantage in the labour market, such as people in poor health or with a disability who have failed the harsher medical tests for incapacity benefit and employment and support allowance, and have therefore been moved onto JSA.

It also explains why changing benefit levels from rising in line with the Retail Prices Index, to the Consumer Prices Index, will result in a reduction in the value of benefits and tax credits.

At the end of the study the report highlights scenarios illustrating the impact of the cuts on specific households, and several of the case studies include the issues of people who are ill or disabled. For instance,

A 50 year old man with mild learning disabilities and literacy issues has done manual work all his life until arthritis in his knees, hips and shoulder forced him to stop work. He has worked and paid contributions all his life until that point. He pays rent of £110/week and council tax of £18/week.
He claimed ESA but was found fit for work, so is now claiming JSA. The number of jobs he will be able to do is severely limited. He also has no access to his own transport and finds public transport very difficult because of the arthritis. His Jobcentre Plus personal adviser finds it difficult to suggest jobs for him. He has been out of work since his arthritis made it impossible to continue in his job two years ago and he has been claiming JSA for a year.
After housing costs he has a disposable income of £65.45 a week (his JSA). After a year as a result of changes in up-rating of JSA and also the LHA rates, his disposable income is likely to drop in real terms to about £64. However he may well also lose a further £8 off his HB as the 30th percentile rate is used to calculate the LHA rate. If he is unable to find a job after a year he will lose a further £10 a week of his HB. If he can not find somewhere cheaper to live he will have a disposable income after housing costs of about £46, a 30% reduction. Even if he can find somewhere cheaper to live, his disposable income will drop to £54, a 17.5% reduction.
If he had been allocated to the work-related activity group for ESA, his income would be £91.30 a week.

(cross-posted at Where's the Benefit?)

Intrusive Questions

in·tru·sive/inˈtro͞osiv/Adjective

1. Making an unwelcome manifestation with disruptive or adverse effect.

2. (of a person) Disturbing another by one's uninvited or unwelcome presence.

Intrusive comments from strangers about my breasts began pretty much as soon as they grew. Intrusive 'are you anorexic?' questions happened when I was slim (and yes, some of that time, I was. Did you really want that answer?). Intrusive comments about my weight are different now, but still intrusive and rude.

But lately, the subject of the vast majority of intrusive questions I get asked are related to being disabled.

Practically every time I go out, someone asks me, "So, what've you done then?" and nods to the crutch. This happens disproportionately in the bus queue, oddly. But can happen anywhere - last week by the guy serving me in Subway, and he didn't even stop there.

I am never quite sure how to answer. In my head I come up with clever and funny stories to answer this question, involving shark attacks and being trampled by donkeys, but in reality these rarely come out of my mouth. I sometimes say, "I had an operation on my leg" which, while true, isn't entirely relevant. For what it's worth, regarding that actual question, I haven't done anything.

I could tell the truth of course, but it's a long, complicated and in depth story, and people wouldn't actually want to hear the whole thing. Not that I'd do this, because it's none of their business. If you are a complete stranger, you are not entitled to my medical history.

Some, like the Subway guy, go further. "What was the operation for?" "What does it feel like?"

Then there's the unsolicited advice that so frequently follows: "My mate had something like that and when he stopped eating *insert random food group here* it got better"; "Have you tried *insert unproven alternative treatment here*?"; "You want to be careful using that stick, you don't want to get reliant on it".

Look, I have a consultant on the case, and she knows a lot about this stuff. You don't. Just drop it.

Think about it this way, if you were waiting in your GP's surgery waiting room, and someone asked you what you were seeing the doctor for, you'd feel that that was an inappropriate and overly intrusive question. It's the same - perhaps worse - at a bus stop, or a sandwich shop, or in the park.

Just like telling me I have big boobs (as if I didn't know) is inappropriate, and telling me to eat less is inappropriate, and telling a slim woman to eat more is inappropriate, so asking a complete stranger about their impairment is also inappropriate.

Sometimes young kids ask me questions, and I don't mind that as much. They mainly want to know if it hurts. Then they get on with whatever they were doing before. Actual friends asking me questions is fine, and actual friends offering me advice based on something they've read can be helpful, because they know what I've already tried and what I'm likely to want to try.

But the man at the sandwich shop and the woman at the bus stop and every other stranger who feels entitled to know, it's not fine. My body is mine, in all its weirdnesses and failings and successes. Some of its details are visible to you, but it's still not ok to just tell me what you think because you can see that I have breasts, a big tummy, a limp, scars or a mobility aid.

It's not benefits that are outrageous, it's the cuts.

The Guardian reports on attacks on people who have been on disability benefits for 10 years or more.

Employment Minister Chris Grayling described the figures as "outrageous" and promised action to get people off benefits and back into work.

There is a shocking lack of acknowledgement or awareness that if someone has been on disability benefits for 10 years are probably pretty ill, have significant impairments, or face massive barriers.

"Thousands of people who have simply been cast aside by a welfare system that does nothing but put them in a queue for benefits and then forgets about them.

"Well those days are over. We will no longer accept a system which writes people off at a drop of the hat and expects the taxpayer to foot the bill."

With statements like that, they appear to be trying to cloak their attacks in the guise of concern for the benefit recipients, but it is a thinly disguised threat where the biggest concern is clearly the 'taxpayers footing the bill'.

It shows a complete lack of comprehension of the reality of the day to day lives of those who have been on long-term sickness benefits, and of why people are in this situation. There are many things the government could do to improve disabled people's lives and, yes, their chances of eventually getting back to work, but cutting off benefits helps no-one.

To put the £4.2 billion in context, we also know that £16 billion worth of benefits go unclaimed every year.

(Cross-posted at Where's the Benefit?)

Not fit for work, not fit for benefits.

Many disabled people are currently terrified of the threats to their benefits, and those with mental health problems are especially scared. The benefit system has always been more geared up towards assessing physical impairment, and the new ESA assessments appear to have reinforced rather than reduced the discrepancy.

Meridian Tonight has reported on the case of Nicola Hobbs, who after years of anorexia applied for a job. However, she failed the health test and so was not given employment. As a result of this she applied for benefit and in this case was found fit for work.

A very confusing situation - judged too ill to work when applying for a job, yet fit for work when applying for benefit. But to add insult to injury, these two opposing judgements were made by the same company - ATOS Healthcare, who do the ESA assessments for the government.

Meridian Tonight has a two minute video covering the story on their website. Worryingly, it is not the first time I have heard of cases exactly like this, with ATOS declaring the same person unfit for work when doing an employment health review, yet fit for work when doing a benefit assessment.

(Cross-posted at the new blog, Where's the Benefit?)

Being Fat

Ten years ago I thought I was fat.

Today, I know I am fat.

Ten years ago, being fat was the worst thing I could ever contemplate.

Today, being fat is fine.

Ten years ago, the word fat was loaded with fear and disgust.

Today, the word fat is a descriptive word only, with no moral judgement.

Ten years ago, the idea of getting fat terrified me.

Today, I don't fear getting fat, because I already am.

Ten years ago, despite being 'underweight', I hated the fat I thought I could see all over my body.

Today, I know there is nothing to fear.

Ten years ago I would have chosen to stay ill rather than take the medications which would help me to get better, but cause massive weight gain.

Today, I take those medications daily.

Ten years ago I thought that fat was the ultimate unhealthy thing I could be.

Today, I know that that anorexia was way more self-destructive, damaging and unhealthy.

Ten years ago, I thought that telling other women how fat I looked, and how awful that was, was normal and ok.

Today, I know that moaning to other women about my body's appearance reinforces the view in all of us that women's bodies should look a certain way.

Ten years ago, the word fat was nothing but an insult.

Today, the word fat is nothing but a descriptive term.

Ten years ago, if someone told me how flattering an outfit was on me, I'd be pleased.

Today, if someone tells me how flattering an outfit is, I know that they really mean it hides the areas they don't consider acceptable.

Essential Reading:

• Reclaiming the Word Fat
  
• Fat is an adjective, not an attack
  
• The words we learn to read; Reclaiming Fat
  
• Rejecting the notion of the flattering outfit
  
• My Big Fat Wish List

Judging Other Women, Judging Ourselves

One of the reasons I stopped reading women's magazines was due to the way they helped to create a mindset within me of judging other women's appearances. And in turn, my own.

All those pap shots, or red carpet shots, with captions such as "OMG, Celebrity A wore item X with item Y. The shame!" always made me start thinking "oh, I'm not supposed to wear X with Y? Since when? What else do I not know? Do I look stupid?"

And "OMG, Celebrity B's appalling outfit just draws attention to her problem areas, not flattering at all!" made me start seeing women's bodies in terms of 'problem areas' and how we must disguise them at all costs.

For what it's worth, I don't even consider the parts of my body that don't work so well as problem areas, so I hated applying that destructive judgement to my bits that are simply more bulgy than others.

But reading those hateful comments made me see similar 'sins' in real life, and the language of body fascism started to invade my consciousness. I was making snap judgements about other women's appearances. As soon as I clocked each thought, I'd immediately challenge it and reassure myself that I didn't think that really, but I hated that the snap judgements were happening at all.

And the more I judged others, the more those judgements affected my own self-esteem. If I could judge Celebrity C, even momentarily, for an unflattering top, when she is frankly at most 1/3 of my size and is conventionally beautiful, then really, what did I look like? And if the women who wrote these magazines, and other women who read them, judged conventionally beautiful and improbably slim women so badly, what on earth would they think of me?

So I stopped reading those magazines. I stopped reading reactionary statements about the supposed fashion sins committed by other women, and I stopped making those judgements about other women, and I began to stop making them about myself. It was one of the best things for my self-esteem and for my self-respect that I have ever done.

With this in mind, I was interested to read this blog post from polimicks.

I have been making a concerted effort to remove appearance-related insults from my vocabulary. Because honestly, if I'm pissed off at someone, it has NOTHING to do with what they LOOK like, and everything to do with what they ARE like.

This rang very true with me. Happy as I always am to argue endlessly against the politics of, say, Ann Widdecombe, I would also endlessly defend her when people criticising her resort to making fun of her appearance and weight. And they invariably do.

Firstly, there is no need. It is cruel, it is nasty, and no contribution for the advancement of women is ever made when politicians are only critiqued on their size and perceived attractiveness. Secondly, it is entirely irrelevant, and unhelpful to the argument anyway. If you want to slate Ann's position on abortion rights, go ahead. But you only devalue your own argument if you make any reference to her never needing one because 'she's so fat and ugly that noone would want to impregnate her'. And yes, I've heard that numerous times. This undermines any valid point within the rest of your argument, as well as being needlessly shallow and hateful.

Criticising other women's bodies goes counter to everything that feminism should stand for. It is hurtful to other women, and it is hurtful to ourselves. And it is irrelevant to any other criticisms of a person, be it their politics, their acting skills, their singing ability, their ability to read the news, or, frankly, anything at all.

Oh, the Outrage!

Certain newspapers are renowned for creating outrage and horror out of the smallest things, but this example had me howling with laughter. That might be related to the painkillers I'm currently on for an excessively painful period, but that just makes it all the more relevant.

It appears that somebody on set thought it would be funny to add 'jam rags' and 'pile cream' to a blackboard shopping list in Marlon Dingle's kitchen. I agree, I think that is quite funny.

I had actually never heard the term 'jam rags' for sanitary towels before, so I've learned something new. And it highlights the fact that just as characters in soaps are rarely seen going to the toilet, they are also rarely seen as having periods. Funnily enough they never watch other soaps, either.

The Fail tells us:

Vivienne Pattison, director of Mediawatch, said: 'Clearly whoever wrote that knew exactly what they were doing, and they certainly didn't need to.
'It's not a particularly helpful phrase to refer to sanitary towels as "jam rags" , and it is unnecessary.
[...]
Sharon Kennedy, 26, from Kingstanding, Birmingham, said: 'I couldn't believe my eyes when it appeared on screen - it's not the kind of language you expect to appear in one of our oldest soaps.
'I had to cover my young son's eyes because I didn't want to have to explain that kind of crass language to him at such a young age.
[...]
Mother-of-two Jean Walker, 38, from Lichfield, Staffs, added: 'I was stunned when my son, who is only seven, turned around and asked me what a jam rag was.
'It's not the kind of thing you want your kids seeing, so it was disappointing to see it on a programme like Emmerdale just after dinner.
'You hear phrases like that used in the street or in the pub sometimes, but to use it in front of millions as part of a TV soap is a pretty silly thing to do.'

These people don't appear outraged, or scared for the moral health of their child, regarding the current storyline of a murdered man's body being found in the woods, or an older woman's admission of graverobbing, or the sad death of the chronic alcoholic pictured in that screenshot that very night (yes, I watch Emmerdale!). But a mention of sanitary towels in slang terms - UNACCEPTABLE!

Oh my. Somebody think of the children!

I use medical terms and slang terms to refer to periods. I try and avoid overtly negative ones like 'the curse', despite my endometriosis and PCOS making me feel quite cursed on days like today. When I lived in France, periods were often referred to as 'les Anglaises' - nobody quite knew why, but one theory was the shade of red that white Brits turn when they holiday in sunny France, and another was to do with the red coats that the guards of Buckingham Palace wear.

So I'm on the blob, I've got the painters in, Liverpool / Arsenal / Man U are playing at home, I'm menstruating, I have my period. There's nothing offensive about that, it's a fact of life, and talking about it shouldn't horrify anyone.

Because I've always had problems with my periods, it is something I have had to talk about regularly. I also had to come to terms with the fact that periods weren't shameful. Buying sanitary towels as a teenager might have felt mortifying, but now I barely notice doing it. There really is nothing to be ashamed of.

The Onion has a nice collection of euphemisms for menstruation, my favourite probably being It's 'that time of the month' where 'I'm not at my best' because 'my vagina is bleeding'. The Museum of Menstruation has the most comprehensive collection of words used to describe menstruating I have ever, ever seen. That site is actually endlessly fascinating, with extensive information on anything and everything to do with periods.

So, what are your favourite period euphemisms? Do you prefer to use less euphemistic language? Would you be horrified to see 'jam rags' on a shopping list? Or is any mention of our 'monthlies' offensive at all?

Budget Impact on Disabled Women

Jess posted that women will bear the brunt of three-quarters of extra taxes and benefit cuts from the latest budget. Disabled people are also at risk, especially with the proposed changes to benefits, so disabled women will be particularly adversely affected.

In a 2004 study by the Joseph Rowntree Foundation, on the extra costs of living associated with being disabled, it was found that disabled people living on benefits face a weekly shortfall of £200 compared to the amount required for them to ensure an acceptable, equitable quality of life and minimum standard of living. And those results were for people on maximum benefit levels.

With many people who are too sick to work being 'pushed into seeking work without any help or support', and the continuing rolling out of ESA, a system condemned as 'unfit' by one of the very people who designed it, along with proposed 'savings' (by which we mean cuts) to Disability Living Allowance (DLA), many disabled people living on benefits will be even more limited.

The cost of living for everybody, as well as the particular extra costs of living for disabled people, continues to rise, and will do so especially with the increase in VAT. As benefits are frozen and essentially cut, disabled women in particular will be seriously adversely affected.

For working disabled women, there will also be more problems. The Joseph Rowntree report found that disabled people with high-medium needs would find themselves with a shortfall of £80 a week, not even including possible PA costs. Add to this that more disabled people tend to work in the public sector than the private sector, where cuts are of course being made, and the situation is frightening. In addition, disabled people who work can claim Disability Living Allowance, so cuts and limitations will affect them too. In fact, some working people can only work because of the way they use their DLA to cover additional costs, so cutting that could well mean that some working disabled people would have to stop work, and claim benefits.

The proposed budgetary changes threaten to send many more women into poverty. They threaten to send many more disabled people into poverty. So for disabled women? It is a very scary time indeed.

Misc Freebies

I have never been known to turn down a freebie, at least not that I can remember. There have been a few very cool ones lately, so thought I'd share.

Firstly, you can get a free bag for life, made from recycled plastic bottles. You can choose your colour. It is associated with Procter and Gamble, so as long as that doesn't bother you, go for it!

Secondly, free food! I got in the post today a box of lovely healthy food, all free! You can too, from graze.com. The code for getting it free is 2DK1RCP. You do have to sign up with payment details, but it's easy to cancel once you've got your freebie. However, I won't be cancelling for now at least, because yum! Full disclosure: if you sign up with that code, I get £1 off a snack box!

Thirdly, a directory of free wi-fi locations.

Fourthly, find your local freegle or freecycle group, and you can give stuff away for free as well as get it :)

You look fine. You really do. All of you.

It is no longer enough to hate your breasts, face, stomach, legs, nose, ears and lips enough to get them sliced and diced or injected with poison. It's no longer enough to have society tell you that your body is so very unacceptable that you should risk your life having major surgery in order to make it fit patriarchal 'rules' about thinness, pertness, tightness, hairlessness and perfection.

Now, you have to apply the same thinking to your vagina. Are the muscles stretched? Are your labia too big - or too small? Is your mons pubis too big - or too small? Ditto clitoris. Well, you can have those cut up too.

That article actually says,

So, if you or your partner is not satisfied with your vagina, a rejuvenation procedure can work wonders.

Your partner? If s/he is not happy with your vagina, that is entirely their problem! And is not ever a good reason for you to have it chopped up. In fact, if they are criticising your vulva or vagina, they certainly don't deserve you.

Amy Clare's review of a Channel 4 programme about 'designer vaginas' is worth reading.

I have had surgery twice this year, and the fear and pain associated with them made me think a lot about, and seriously question, why people would put themselves through that voluntarily. Just how strong are society's pressures, that they cause women to go through massive pain and lots of health risks, to get a smoother face or less saggy boobs?

When a woman chooses to have cosmetic surgery, I feel sad. Until we live in a society where what we look like is not used to oppress us, I question how much free choice we ever really have to make these decisions.

Help Make It Stop

Via Women's Views on News, I discovered this video from the Metropolitan Police, telling people to dial 999 if they hear domestic violence attacks through the walls from their neighbours.



It shows the shocking statistic that almost 1 in 5 murders in London are the result of domestic violence, and ends with the statement, You make the call. We'll make it stop.

It's an issue that has provoked discussion with my friends over the years. Many, many of us have been in this situation, hearing arguments next door escalate, and wondering what to do.

I personally have dialled 999 when things sounded like they were getting really out of hand, but it wasn't an easy decision. When you do dial 999, you fear that you will make things worse for the woman, when the man is released, if he is taken into custody at all. You fear that the police will not take it seriously. You even fear that you may be misinterpreting the situation, despite the smashing and screaming that you really can't mistake.

But I did dial, on more than one occasion, because I feared that that would, indeed, be the time that he would kill her. Because I could not bear to hear her suffering and terror any longer. Because I could not live with myself if I just sat there and allowed it to happen. Because she was being beaten, her furniture was being thrown, and nobody should need to tolerate that. Because I could hear her daughter crying upstairs.

I dialled 999, but even having done it I was never 100% sure it had been the right thing. If it would make him more aggressive to her later. If the police would 'make it stop' at all. In the end I spoke to my neighbour alone, asked her if I had done the right thing, and asked whether I should I do it again, if necessary. She was a proud woman, and said she was fine, but did eventually agree that if it sounded really bad, I should call for help.

So what about you? Have you dialled 999 in that situation? Have you wanted to, but not dared? Have you decided against it? And why? What made you call, or what made you not call?

Rapist Urged Not to Rape

My local paper has published an article following the sexual assault of a woman. They report that the police are urging a change in behaviour to prevent further rapes. Sadly, contrary to the title of this post, the change in behaviour they are encouraging involves the behaviour of local women, who are advised to not walk alone on the paths of the Dearne Valley Trail.

So, I would like to make a few changes to the article. My alterations are in bold

POLICE have issued this image of a man who subjected a 50-year-old woman to a terrifying sex attack as she walked her dog at a South Yorkshire beauty spot.
The man assaulted the woman as she he walked alone on a secluded path on the Dearne Valley Trail, near Elsecar, Barnsley, at around midday on Thursday June 24.

The stockily-built attacker was white, around 30 years old, with short fair hair and a round face. He was wearing blue shorts and a white T-shirt and fled towards Elsecar Park following the attack.

Police are warning people using the trail to be vigilant and report suspicious activity immediately. They are also urging women not to walk the paths alone. They are particularly urging the rapist to stop raping, and want men to be aware that if they walk the paths alone, they may cause alarm to the women in the area, due to this recent attack.

Det Sgt Steve Trigg, from South Yorkshire Police, said the woman was left "traumatised and in shock" after the serious sex assault, and feared she might be killed.

Anyone with information about the attack should call 0114 2202020 ext 736551.

Not Ever

Rape Crisis Scotland have created a TV advert, aimed at tackling prejudice against rape victims.


It follows a survey carried out by the Scottish government, which found that 23% of people thought a woman was partly responsible for being raped if she was drunk at the time of the attack, and 17% if she was wearing revealing clothing.

Their campaign ad helps to make the point that a woman is never, ever responsible for being raped. Never. Not if she is drunk, not if she has said yes before, not if she said yes to your friend, not if she is naked in the street.

Their website is a good source of information, and also has posters available for download, and details of a national helpline.

As I learned on my first ever Reclaim the Night march,
"Whatever we wear, wherever we go,
yes means yes and no means no".

Small Commitment for a Big Society

Rape Crisis (England and Wales) has organised a campaign for sustainable funding for Rape Crisis centres, as there are areas without services at all, and other areas where the existing services are under threat of closure.

They are therefore asking for reassurance from the Coalition Government that it will keep its sustainable funding commitment to Rape Crisis.

As someone who has used my local Rape Crisis centre, I can only praise how well they support women and girls, and that service no longer existing would be devastating for my city. Statistics for sexual violence are not going down, and we certainly need more specialist, independent women-only services for survivors, not risk there being even fewer.

On their facebook page for this campaign, they have suggestions of things that we can do:

• Join our supporters’ group on Facebook
• Publicise the group and this event page to all your Facebook friends and encourage others to join and do the same
• Send a letter to Theresa May MP, Home Secretary and Minister for Women and Equalities, voicing your support for a specific, long-term, sustainable fund for Rape Crisis groups, so that the crisis in Rape Crisis ends once and for all. You can write your own, or use our template letter to urge David and Theresa to honour their commitment to Rape Crisis (England and Wales). Find the template on our group page
• Ask your MP to support the right of sexual violence victims/survivors in your area to access vital Rape Crisis services. You can find out how to contact your local MP at: www.theyworkforyou.com
• Ask your MP and the Government for parity with the Scottish model of funding for Rape Crisis in England and Wales:
The National Co-ordinator of Rape Crisis Scotland describes the impact of having a Rape Crisis Specific Fund there:

‘Even though some centres are still struggling, the general funding situation has improved significantly over the past four years...Because the funding is restricted to Rape Crisis groups, centres no longer have to compete with one another; this has made a huge difference in terms of the service and support they can offer women. Four new centres have also opened in areas where previously there was little or no service provision. ‘

Along with the numerous verbal public and parliamentary statements promising sustainable funding for Rape Crisis from both the Conservative and Liberal Democrat parties, the Coalition Government has told us that it will adopt a ‘common sense’ attitude to addressing the ‘needs of society by enabling funding to deliver innovative and personalised services to the community.’

They have committed to:
• Freedom
• Fairness
• Responsibility

Big Words ...but when will they become a Big Reality? Support women and girls who’ve been affected by sexual violence to have their voices heard by insisting that the Government honours its commitment.

Don’t forget: Send our template letter to Theresa May MP, Home Secretary and Minister for Women and Equalities, asking that she honours the Coalition Government’s commitment to provide long-term sustainable funding for Rape Crisis centres

I will also reproduce the template letter they provide here, for those who don't use facebook. It is to Theresa May, the Home Secretary and Minister for Women and Equalities.

Please do send it if you agree with the sentiment, and feel free to alter it to add things you feel are important to get across.

Rt. Hon Theresa May MP #Your Address #
Home Office
Peel Building
2 Marsham Street
London
SW1P 4DF

# Date#

Dear Home Secretary,

I am writing to you (or Organisation’s Name is writing to you) to seek your assurance that the Coalition Government will HONOUR its publicly stated COMMITMENT to provide long-term sustainable funding for Rape Crisis centres affiliated to Rape Crisis (England and Wales) (RCEW) by providing a specific Rape Crisis fund.

The new Government has stated, in its Coalition agreement, ‘Our Programme for Government’ (May 2010), and reiterated within parliamentary debates and public interviews, that it will support the sustainability and development of Rape Crisis provision in England and Wales.

This commitment came about as a result of the publicly acknowledged critical situation that member groups of RCEW are experiencing, as highlighted by ‘The Crisis in Rape Crisis’ and other independent reports over the last decade. It was also an outcome of continued and consistent lobbying and campaigning by RCEW and their supporters, who are gravely concerned about the consequences of the historic neglect and lack of funding for Rape Crisis groups, which led to 10 centres closing in the preceding 5 years. The Government’s commitment was a response to these specific issues facing Rape Crisis (England and Wales) member groups.

Independent research and survivors’/victims’ testimonies consistently show that the majority of survivors/victims of sexual violence are women and girls who do not report to the police and prefer to access women-only services. Many of these survivors/victims will, therefore, prefer to access their local Rape Crisis centre as they provide specialist, women-centred services, which are distinctive within the Third Sector.

However, a lack of sustainable funding means that, for the majority of England and Wales, Rape Crisis Centres do not exist in many areas and the ones that do exist are under threat. This reduces women’s and girls’ choices and opportunities in accessing specialised, local support for sexual violence and this does not promote a fair, just and Big Society.

I (or Organisation’s name) urge you to honour the commitment and to work with Rape Crisis (England and Wales) to ensure that all member groups are able to access the promised funding.

Yours sincerely,

Father's Day

It's Father's Day, the day every year I try not to get too bitter at having lost him.

When I was a kid, sometimes during half-term holidays I used to go to his work with him, when he was a German lecturer.

One day I sat in his class when they were doing an aural comprehension exercise, which in this case involved listening to a song and answering questions about it.

To keep me from too much boredom, I joined in with the class and listened to the song on headphones, and for some reason it totally captivated me. I made him put it on a tape for me and I listened to it again and again through my early childhood. My obsession with listening endlessly to quirky and odd pieces of music still hasn't waned to this day.

Then I remember coming home from University once and asking Dad if he still had the song on tape anywhere. He hunted round, found it and played it, and we listened to it again. This time, I asked what it was about, and it was totally disillusioning to find out that it's pretty reprehensible. The gist of it is a man telling his children not to play with the gypsy children in the woods, because they were naughty and dirty, but to play with their brothers instead. I was gutted, that this song I had so adored, was so offensive.

But, for the sake of nostalgia, here it is. My genius brother found this and we're pretty sure it's the very version we used to listen to.



'Spiel nicht mit den Schmuddelkindern' sung by Franz-Josef Degenhardt.

Spoonless Substitute

If I had the spoons, I could perhaps have written a whole post on each of the links below, but my body is overtaking everything else at the moment, so here is a collection of some writings on the internet which have caught my eye in the last few days.

Does your iPod support rape in the Congo?, looking at rape being used as a weapon in areas of conflict over minerals used in electronics.

Disability Terminology: A Starter Kit for Non-Disabled People and the Media. I like that she acknowledges that she's coming from an American perspective, where the preferred language used by disabled people is often different from in the UK, and she makes some great points, including one expanded on by Elena Newley in "I don't suffer!".

FWD's Ableist Word Profiles are always worth a read, too, discussing disablist language further.

I loved this story about 9 women in Northern Ireland who have been acquitted of criminal damage after breaking into the premises of an arms manufacturing company. Impressively, the jury agreed with them that rather than commit a crime, they had in fact taken action to prevent crime and "protect the lives and property of people in the Gaza Strip and to stop alleged war crimes being committed by the Israeli forces".

Other stories and writing I've found thought-provoking and interesting are:

Women's health shortchanged because of bias towards male subjects in studies

The potential and the danger of first person in feminist discourse

Informed Choice or Restricted Right on thinking of abortion as a right rather than a choice.

The Absence of No: Re-considering the Yes focus in critique of rape culture

Where the Fight Against Child Obesity Can Go Very, Very Wrong

and 'Biggest Loser' TV programme finalist says the show gave her an eating disorder.

Greencoat Boy Packs a Punch to Equality.

One great thing about the internet, which is helped a lot by twitter, is the immediacy of information. When something goes wrong, all sorts of people can rally round and react, sometimes within minutes of the event itself.

So things happened like that tonight. @LGBTLabour posted the following messages on their twitterfeed.



Within minutes, this became a Trending Topic on twitter, meaning it was one of the most talked about things at that time. The discussion, now with the tag #bigotbar, is still ongoing. And people are starting to discuss actions like boycotts, and mass emails to the Punch Taverns who own the pub involved.

As Grace Fletcher-Harwood has said, they picked the wrong LGBTs to mess with! She also gives links to some pub review sites which accept comments on pubs, and the contact details of the Chair of Licensing for Westminster Council.

Sarah Brown joined in, with



All of that is why I love the internet.

But then, as quickly as things rise, they can also start to descend. A few jokes here and there. A few jibes. The point that someone has been treated so appallingly on the basis of their gender or sexuality gets overtaken by the vital importance of a witty pun on the situation. Equally, facts start to change a little, and get edited and shortened, often cutting out key information.

The F Word's own Helen was one of those who pointed out that



So let's stop introducing exclusivity and bullying into a human rights matter. The Greencoat Boy pub have actually broken the law, in refusing to provide a service to people on the grounds of their sexuality and gender. That goes against The Equality Act 2010, I'm told.

If you are as angry as I am about this, those links above, in this post, will give you a place to start on what action you might want to take. There are people to contact, and if you want to boycott premises in your area which are run by Punch Taverns, you can find out where your local Punch Taverns pubs are here.

And keep an eye out for updates - here on The F Word of course, with a Greencoat Boy search on twitter, on blogs and such.

I am so, so glad that our society is in a place where many people's initial reaction to something like this is to be outraged, not resigned to it. That the people involved want to fight, rather than feel shamed by these bigoted actions. That others are jumping in, sharing information and working stuff out together to try and make this the last, ever, place in Britain that refuses service to someone because of their gender or sexuality.

Well, we can dream.

Edited to add, another great point has been made by @Lisybabe:

Signal Boost: Feminism and Mental Health – Call for Submissions

Found via FWD (feminists with disabilities) blog:

Feminism and Mental Health – Call for Submissions – Deadline: June 1, 2010

Call for Submissions:

The lived experience(s) of mental health in feminist communities

Call for submissions from people of any gender who identify with feminism and have lived experiences of a psychiatric diagnosis.

Our upcoming anthology, Feminist’s Navigate Mental Health (working title), will explore the complexities of navigating mental health and how a feminist identity may (or may not) shape those experiences, thoughts and feelings.

Submissions are welcomed in the form of personal short stories.

The submissions received will shape the outcome of the book. The final
manuscript will be submitted to relevant independent publishers.

Possible themes may include (but are not limited to):
o Coping – what works and what doesn’t
o Any positive aspects of your mental health that are commonly considered deficits
o Treatment preferences and past experiences
o Medication
o Personal/lived understandings of your diagnosis (acceptance or rejection)
o Stigma/tension around mental health issues in the feminist community
o Feminism and well-being/strength/empowerment
o Feminism and distress

Guidelines:
o Remember to take care of yourself while writing about topics that may be distressing;
o Good writing skills are great, but not mandatory! We will work with you to edit your piece;
o Submissions should be saved in .doc or .rtf, size 12 font, Arial or Times New Roman, and double spaced;
o 500 to 4000 words
o Include contact information and a brief biography;
o Only email submissions will be accepted;
o Submission deadline is June 1st, 2010.

Who we are
The women behind this project are Jenna MacKay and Alicia Merchant. Jenna is a psychiatric survivor and community activist who is particularly interested in violence and mental health. Alicia is a freelance writer and contributing editor for various magazines and has been published in CR Magazine, thirdspace and the Globe & Mail. Both self-identify as feminist, are interested in critical perspectives of health and live in Toronto. This project is not affiliated with any institution or organization.

Comments, concerns, questions and submissions should be directed to:

fnmhsubmissions@gmail.com

Blogging Against Disablism Day: What Is Disablism?

What is disablism?

Disablism is arranging a meeting in an inaccessible venue.

Disablism is sitting in the 'priority' seats on public transport and not offering those seats to a disabled person, if you are not disabled yourself.

Disablism is when a doctor ignores physical health problems because you have mental health problems.

Disablism is parking in a disability car parking space when you are not disabled (even if it is *just for a minute*).

Disablism is using words like retard, psycho, spastic, handicapped and lame.

Disablism is thinking that making buildings accessible is 'bending over backwards' and political correctness gone mad.

Disablism is presuming that disabled people are less than you.

Disablism is not hiring a disabled person because of assumptions you have about their abilities or needs.

Disablism is staring at someone because they look different.

Disablism is making assumptions about what someone can and cannot do.

Disablism is making offensive jokes about a group of people on the basis of their impairment.

Disablism is presuming that disabled people's lives must be awful.

Disablism is casting a non-disabled person to play a disabled person in a play or TV show.

Disablism is disability hate crime.

Disablism is refusing to prescribe contraception to a learning disabled person because they can't possibly want to have sex.

Disablism is not acknowledging that many disabled people experience discrimination on multiple levels.

Disablism is frequently institutionalised.

Disablism is assumptions.

Disablism is not asking whether your event needs a sign language interpreter.

Disablism is going ahead and doing what you think might help, rather than asking someone what would help.

Disablism is refusing to prosecute men who rape mentally ill or learning disabled women, because the women are 'unreliable witnesses'.

Disablism is thinking that you don't need to consider access needs, because disabled people don't come to your events (and not wondering why they don't).

Disablism is assuming that someone you haven't met (or even that you have) is not disabled.

Disablism is presuming that people diagnosed with schizophrenia are dangerous and violent.

Disablism is thinking it is less tragic when a disabled person kills themselves than it is when a non-disabled person does.

Disablism is presumptions about 'quality of life'.

Disablism is behind all these news stories.

Disablism is sacking somebody when they become ill or disabled.

Disablism is not in the dictionary.

Disablism is telling us we are being punished for something we did in a past life.

Disablism is thinking that if someone doesn't look disabled, then they are not.

Disablism is ignoring somebody because you don't understand.

Disablism is thinking that disabled people 'have it too easy these days' and are therefore being overly demanding if they want to be able to get into a building.

(cross-posted at the f word)

Plans for Sunflower Day :D

If you want to meet up to plant the sunflowers, we will be meeting at 12 midday outside the Blue Moon cafe in Sheffield city centre, by the Cathedral. Please be prompt!

Alternatively, you can plant some seeds wherever you are in your locality.

There is also now a flickr group for this event. And there will be an indymedia article up when it publishes!

Check the posts below for other info and link regarding this event.

Sheffield Sunflower Day Approaching!

Plans are afoot for International Sunflower Guerrilla Day in Sheffield.

Some people will be meeting in the city centre at 12 to take a walk and plant some blooms, others will be doing it individually or with friends in their areas.

Keep an eye on the facebook group, or on sheffieldsunflowers.org.uk for the latest.

The Election Is A Comin'

I'm not recruiting for votes. I haven't even conclusively decided who I'm voting for. So I thought I'd share some of the tools and sites I've been looking at to help me to decide who will get a cross on my ballot paper, and who will definitely not!

There are quizzes like Who Should You Vote For? online, where you tell them your attitudes to policies, and they tell you at the end which parties your views seem to coincide with the most.

Abortion Rights are doing an election campaign. You can download a factsheet, and lobby your candidates via the site. You just type in your postcode and it lets you email all your local candidates. It then requests that you let them know your candidates' responses to their questions on abortion rights, so that others who enter their postcode can see where everyone stands.

I have only had a response from one candidate (Green, and she answered the way I hoped she would), but hopefully the others will be forthcoming too.

Similarly, the UK Disabled People's Council have put together a list of questions which you may want to question your prospective MPs about.

MyGayVote.co.uk has pie charts showing how the different parties have fared in terms of their past votes on LGBT issues.

Planet Mouret Films is "a blog designed for learning disabled adults and those who are involved in the LD community", with lots of straight forward information about the general election, links to easy-read information about voting, easy-read manifestos and the rights of learning disabled adults to vote.

And Scope are urging "local authorities to act immediately to make sure polling stations are more accessible. They have warned that some people may find it difficult to vote in next month’s elections but said it was not too late for councils to make a difference."

(Cross-posted at The F Word)

Sheffield Sunflowers: Domain Name!

We have a domain name! From now on, www.sheffieldsunflowers.org.uk will lead to the latest updates on International Sunflower Guerrilla Day.

Sheffield: International Sunflower Guerrilla Gardening Day

May 1st is International Sunflower Guerrilla Day, where people all over the world (well, probably the northern hemisphere) go out and plant sunflower seeds in places around where they live.

Having just read On Guerrilla Gardening: A Handbook for Gardening without Boundaries, I am feeling totally inspired and have started to organise an event for this magical day here in Sheffield.

There is a thread on the Guerrillagardening.org forums, and a facebook group for the event. Sign up for either of those to keep up to date with the plans, or keep an eye open here for news.

What you will need:

Sunflower seeds.
A bottle of water.
Something to make holes with (pencil, screwdriver, trowel, or in my case, a crutch!).

What to do:
Dig a small hole about 2cm deep, drop in a seed. Cover with soil. Water.

That's it! As many times as you like, in as many places as you feel will be cheered up by a glorious sunflower in a couple of months.

I've been stocking up on sunflower seeds at various bargain shops, if you grab a pack or two each time you see them, you should have plenty by the date.

There will be people meeting somewhere central to go and garden together, and others individually planting seeds where they are. Wherever you are, Sheffield or not, join in. Just imagine how happy you, and others, will be when there are unexpected sunflowers around!

12 Reasons I Won't Follow You Back on Twitter

You are unlikely to get a refollow if...

1. You post about diets.

2. Your posts are in a language I don't speak.

3. You post about gaining thousands of followers in a night, and you have a total of 34 followers.

4. You are following more than 10x the number of people who are following you.

5. You follow, unfollow, refollow, unfollow and refollow me so that I get notifications about you in my email several times a day.

6. You are any kind of spammer or bot.

7. Your posts are hidden. I don't want to request permission when I don't know what it's for.

8. You have no profile information.

9. Your profile information is inane.

10. You are sharing the love of Jesus.

11. Hate speech. Pretty much any.

12. You like Jeremy Clarkson.

Otherwise, go for it! So, follow me if you dare!

More of this stuff

More 'give up your seat for someone who needs it more' links. Proper analysis and posts will follow asap.

People who don't give up their seat to someone in need

Make my day - offer a pregnant lady your Tube seat

When on a bus should a young person give up their seat for an elderly person? If so, how old does the person have to be...you wouldn't want to offend anyone!

NYC packs some punch behind plea to give the disabled your seat

Japanese train poster #1

Japanese train poster #2

Not Everyone "Stands Up for People with Disabilities"

Anthony Barnes: Standing room only (even on crutches)

do people give up their seat on the bus/train?

Give up your seat and make someone's day -- whether they're pregnant or not

Giving up your seat on the bus to someone who needs it more

The Supertram Problem Exists Worldwide.

Following my post yesterday about people not giving up 'priority seats' on Sheffield Supertram for disabled people, I have found some interesting links online.

I was reading Man on Crutches on Train with Camera and, about 2/3 of the way down, some words sounded familiar - I realised they were linking to a comment I made on the subject last April!

That article actually has some really interesting thoughts and information, which I want to look at in more detail when I have the chance. And it is talking about this blog, named People Who Sit In The Disability Seats When I'm Standing On My Crutches, where the creator took photos of those very people. This blog has not been posted on for nearly a year now, sadly. Though I could create my own alternative for Sheffield trams!

Another article I've found is The iPhone Vigilante, about the blog mentioned above. And I also found a discussion board message on the same issue, but in Singapore. This thread is another that I will havfe to read in better detail some other time, but one new idea I got from it is to suggest to Stagecoach that the messages announced through the tram system could include one about giving up your seat for someone who needs it more.

There is a discussion here, a yahoo discussion and a Facebook group, for those of you so inclined!

There will definitely be more happening on this issue, watch this space! (well, this blog at least).

Disabled Access to Stagecoach Supertram in Sheffield

Something has bewildered me for some time. It's that normally, when I'm on a bus in Sheffield, if none of the Priority seats are free, other passengers usually offer me a seat when they see my walking stick or crutches. However, when I take the tram, this virtually never happens. I have no idea why tram passengers don't do this when bus passengers do.

Offering me a seat is immensely helpful. Standing up for any period of time, even short periods, causes me pain. Balancing on a moving vehicle with only one free hand, or no free hands (depending on whether I'm using one or two crutches) is really difficult, when my balance is already bad. And being able to sit down, even for a short journey, helps to delay the inevitable exhaustion, which means I can hopefully get a bit more done, wherever I'm going.

Since I had surgery a month ago, I have needed to sit down more. Standing up causes me much more pain, and even the slightest things tire me out.

So, this morning, I emailed Supertram about this, saying:

Dear Supertram,

I use the buses and trams regularly in Sheffield, and whenever I take a bus, if there are no free seats, I am nearly always offered a seat when someone sees that I am using crutches or a walking stick. However, when I take the tram, I am virtually never offered a seat.

I do not know why this is the case, but people on buses seem to have a lot more respect for the 'Please give up this seat if a disabled person needs it' type signs than they do on trams.

It makes my tram journeys very difficult and painful, and is putting me off using them at all.

I was wondering if there is anything you feel you could do to help with this situation. I am obviously aware that there are people with invisible disabilities who would have every right to keep their seat, but that cannot be the case for everybody who stays in the 'disabled priority' seats when there are disabled people clearly struggling with standing.

The first things that come to my mind in terms of what you can do, are awareness raising campaigns on the trams themselves, and more proactive action from the conductors in this area.

I would appreciate your thoughts on the situation,

The response I received was, frankly, awful. They are taking no responsibility for their role and show no acknowledgement at all of my concerns.

They say:

I was concerned to hear that you find it difficult to use the priority seating if another passenger is already there. In the first instance I would suggest that you politely asked the passenger if they would leave the seat to enable you to use it . I agree with your point that some passengers may have an invisable inpairement [sic] but the seats are clearly marked and there should be no problem in the majority of cases. Experience has shown that not all passengers who warrant the use of the priority seats wish to do so and although I would expect conductors to assist when requested they will not always do so automatically. I will pass on your comments re awareness training but feel that the best way to "educate" able bodied passengers to give up the seats is if they are asked to do so by other passengers.

It's a cop-out. I feel, more strongly than ever, that they need to look at the 'Priority seats for disabled people' signs and see that whatever they currently have up is not doing the job, as people are paying no attention. There are only a few available seats which don't involve going up steps, so these need to be seriously prioritised. In addition, training the ticket inspectors in assisting disabled passengers to find a seat could be an effective way of combating the problems.

Interestingly, I was sent the link to this government consultation on Improving Bus Passenger Services today, and learned that:

7.9 We are seeking views on further ways to ensure stricter enforcement of the duties of drivers, inspectors and conductors with regard to disabled people. Conduct Regulations set out the duties of drivers/ conductors of regulated public service vehicles with respect to passengers in wheelchairs and other disabled persons. DfT’s guidance specifies that passengers who are not disabled but are occupying the wheelchair space could be asked to move to allow a passenger in a wheelchair to board, provided that there is room for the passenger to move elsewhere on the bus and the seating and standing capacity will not be exceeded. Drivers are also required to take reasonable steps to ensure the safety of their passengers.

7.10 The Public Service Vehicles Accessibility Regulations stipulate that there should be clear signage for the priority seat and the wheelchair space on the bus. The Department is committed to delivering transport that works for everyone. We have therefore been considering how enforcement of these regulations can be improved. Stricter compliance with the Conduct Regulations would go a long way in ensuring that the wheelchair space is available for a passenger in a wheelchair.

7.11 We therefore seek views on measures to ensure stricter compliance with the regulations in general, particularly on whether introduction of financial sanctions against operators who persistently breach any aspect of the regulations, would be useful.

Now, while this regulation is regarding buses, the trams in Sheffield provide a very similar service, and should take account of the current regulation and proposed changes. My safety is certainly compromised when I have to stand on their vehicles.

I don't know what steps to take next. I was hoping that a response from Stagecoach would be helpful and open to looking at improvements. However, their huge failure to take what I have requested into account has really disappointed me.

We Are Women Too

This video is of Eleanor Lisney and Michelle Daley, talking at Million Women Rise at the weekend, about disabled women's lives. About the reality of domestic violence committed against disabled women, including individual women's accounts, and about Fiona Pilkington who killed herself and her disabled daughter after being unable to get help against the abuse and intimidation they were suffering. About refuge provision - scarce at the best of times, and accessible provision being almost non-existent. About the particular vulnerability of disabled women when it comes to sexual assault and brutality in care homes or by carers, and the difficulties in reporting and being heard, as well as barriers to accessing services. And about multiple identities, and how disabled women can experience multiple discrimination from within the disability movement, other women, the community and society.

"It is about raising the voices of our disabled sisters. It is also about ensuring our recognition within this struggle for human rights. [...] We all have a responsibility to ensure that disabled women are recognised, and respected, as equals within this struggle, and all our voices to be heard. We are women too."

[Edited to add - There are transcripts of these speeches here, thank you so much to Eleanor, one of the speakers, for letting us know, and to Felix Gonzalez for making the videos and doing the transcription. More transcripts of speeches of the day will be published at http://connectculture.wordpress.com/ in due course.]

Charter of Rights of Women Seeking Asylum

Asylum Aid has created a Charter of Rights of Women Seeking Asylum.

The way that we are treating these women is appalling. Completely ignoring the trauma they have suffered, we are locking them up or forcing them to beg and sleep rough, without support, healthcare or money.

Asylum Aid have created this video.

Every single woman from Asylum Aid on Vimeo.

They say,

We believe a change of culture designed to produce a genuinely gender sensitive asylum system is urgently needed to ensure that women seeking asylum receive a comparable standard of treatment to women in similar situations who are settled here already.

There is also a campaign briefing available, and they are campaigning so that all member states of the European Union to adopt gender guidance so that women's asylum claims will be dealt with consistently.

(cross-posted at The F Word)

Headache

I've had a headache for a week. Constant. I've been taking painkillers following surgery, then I've had a horrendous mouth infection, so taking more painkillers for that. So I couldn't understand why I still had a headache!

So I read about painkiller headaches. That sounded right. Taking painkillers can cause headaches. So I read, you're supposed to stop taking the painkillers to make the headache go away. But I'm not taking the painkillers for the headache, so what to do? I can't stop taking them or my mouth may explode and my foot fall off (not that I'm prone to exaggeration).

But then I read that you only get painkiller headaches if you are taking the painkillers for the headache. If you are taking them for some other reason, they don't happen. And I am, I'm taking them for my leg and my mouth.

So, I still have a headache and no idea why. I initially thought it was a pre-menstrual one, then it carried on post-menstrually. Then I thought it was the toothache causing it. It could still be I suppose.

I don't know. I'm just moaning.

Misery

One of my problems is that I ignore things my body and mind are telling me to such a degree that they have to pretty much knock me on the floor before I pay attention.

I had surgery on my leg last Thursday, and as today there was slightly less pain than yesterday, and as I could walk 3 steps without crutches, I spent a lot of the day determined to be HAPPY dammit. It was only when I found myself sobbing, and this carried on for a good half hour, that I realised how much I'd been kidding myself all day.

Things might be marginally better than yesterday, but I'm still tired, in pain, traumatised by surgery while awake, wondering what on earth is going to happen next, feeling seriously let down and scared.

But when I don't want to see it, I don't see it. Until I'm forced to.

3 New Posts

I have three new posts up over at the f word.

Herstoria Magazine, Pink Boys, and This Is Not An Invitation To Rape Me.

Check them out!

Blame the Victims... Again!

I had the misfortune of watching Carol Malone on TV this morning. She said that if women get drunk or dance provocatively, it's really their own fault if they get raped.

She also said that men can't be blamed for raping women when they (the men) are drunk, because they don't really know what they're doing.

Double standards much?

Who is Most Committed?

This awesome woman shows the madness of gay marriage bans.

Pharmacology

Pharmacies seem to have a new policy of doing medication reviews with patients, and as I use whichever pharmacy is most handy at any given time, I keep using different ones and thus having more and more medication reviews.

Today's was interesting. It turns out that two of my meds cancel out the action of one other, and that that one other cancels out the action of the other two. Interesting! All three prescribed by the same person, incidentally.

Also, the pharmacist made an assumption about my mental health diagnosis on the basis of the meds I'm on. It is a diagnosis I have had in the past, and his guess seems as arbitrary as the numerous guesses I've had from numerous psychiatrists I have seen, so no harm done.

He was impressed that I knew what each of my medications was for. It's worrying, he said, how many people don't. I'm the kind of person who always wants lots and lots of information. I can't imagine swallowing stuff daily without having researched it thoroughly, never mind not knowing what it was even prescribed for.

Someone in my family has been on antidepressants for 21 years, and she still has no idea that that's what they are. She obediently swallows them every night. I haven't had the heart to tell her, but I don't know if I should or not. She knows I looked it up, and she hasn't asked me for details. If she asked, I would definitely tell her, but as she hasn't... I dunno. The doctor tells her that they help her to feel better, and that she would feel much worse without them, so she should keep taking them. She's of a generation to not really challenge doctors.

As for me, I keep taking the pills. I'm reducing the odd one slowly, but I seem stuck on them for the time being at least.