Tuesday, March 16, 2010

Disabled Access to Stagecoach Supertram in Sheffield

Something has bewildered me for some time. It's that normally, when I'm on a bus in Sheffield, if none of the Priority seats are free, other passengers usually offer me a seat when they see my walking stick or crutches. However, when I take the tram, this virtually never happens. I have no idea why tram passengers don't do this when bus passengers do.

Offering me a seat is immensely helpful. Standing up for any period of time, even short periods, causes me pain. Balancing on a moving vehicle with only one free hand, or no free hands (depending on whether I'm using one or two crutches) is really difficult, when my balance is already bad. And being able to sit down, even for a short journey, helps to delay the inevitable exhaustion, which means I can hopefully get a bit more done, wherever I'm going.

Since I had surgery a month ago, I have needed to sit down more. Standing up causes me much more pain, and even the slightest things tire me out.

So, this morning, I emailed Supertram about this, saying:
Dear Supertram,

I use the buses and trams regularly in Sheffield, and whenever I take a bus, if there are no free seats, I am nearly always offered a seat when someone sees that I am using crutches or a walking stick. However, when I take the tram, I am virtually never offered a seat.

I do not know why this is the case, but people on buses seem to have a lot more respect for the 'Please give up this seat if a disabled person needs it' type signs than they do on trams.

It makes my tram journeys very difficult and painful, and is putting me off using them at all.

I was wondering if there is anything you feel you could do to help with this situation. I am obviously aware that there are people with invisible disabilities who would have every right to keep their seat, but that cannot be the case for everybody who stays in the 'disabled priority' seats when there are disabled people clearly struggling with standing.

The first things that come to my mind in terms of what you can do, are awareness raising campaigns on the trams themselves, and more proactive action from the conductors in this area.

I would appreciate your thoughts on the situation,

The response I received was, frankly, awful. They are taking no responsibility for their role and show no acknowledgement at all of my concerns.

They say:
I was concerned to hear that you find it difficult to use the priority seating if another passenger is already there. In the first instance I would suggest that you politely asked the passenger if they would leave the seat to enable you to use it . I agree with your point that some passengers may have an invisable inpairement [sic] but the seats are clearly marked and there should be no problem in the majority of cases. Experience has shown that not all passengers who warrant the use of the priority seats wish to do so and although I would expect conductors to assist when requested they will not always do so automatically. I will pass on your comments re awareness training but feel that the best way to "educate" able bodied passengers to give up the seats is if they are asked to do so by other passengers.

It's a cop-out. I feel, more strongly than ever, that they need to look at the 'Priority seats for disabled people' signs and see that whatever they currently have up is not doing the job, as people are paying no attention. There are only a few available seats which don't involve going up steps, so these need to be seriously prioritised. In addition, training the ticket inspectors in assisting disabled passengers to find a seat could be an effective way of combating the problems.

Interestingly, I was sent the link to this government consultation on Improving Bus Passenger Services today, and learned that:
7.9 We are seeking views on further ways to ensure stricter enforcement of the duties of drivers, inspectors and conductors with regard to disabled people. Conduct Regulations set out the duties of drivers/ conductors of regulated public service vehicles with respect to passengers in wheelchairs and other disabled persons. DfT’s guidance specifies that passengers who are not disabled but are occupying the wheelchair space could be asked to move to allow a passenger in a wheelchair to board, provided that there is room for the passenger to move elsewhere on the bus and the seating and standing capacity will not be exceeded. Drivers are also required to take reasonable steps to ensure the safety of their passengers.

7.10 The Public Service Vehicles Accessibility Regulations stipulate that there should be clear signage for the priority seat and the wheelchair space on the bus. The Department is committed to delivering transport that works for everyone. We have therefore been considering how enforcement of these regulations can be improved. Stricter compliance with the Conduct Regulations would go a long way in ensuring that the wheelchair space is available for a passenger in a wheelchair.

7.11 We therefore seek views on measures to ensure stricter compliance with the regulations in general, particularly on whether introduction of financial sanctions against operators who persistently breach any aspect of the regulations, would be useful.

Now, while this regulation is regarding buses, the trams in Sheffield provide a very similar service, and should take account of the current regulation and proposed changes. My safety is certainly compromised when I have to stand on their vehicles.

I don't know what steps to take next. I was hoping that a response from Stagecoach would be helpful and open to looking at improvements. However, their huge failure to take what I have requested into account has really disappointed me.

Wednesday, March 10, 2010

We Are Women Too

This video is of Eleanor Lisney and Michelle Daley, talking at Million Women Rise at the weekend, about disabled women's lives. About the reality of domestic violence committed against disabled women, including individual women's accounts, and about Fiona Pilkington who killed herself and her disabled daughter after being unable to get help against the abuse and intimidation they were suffering. About refuge provision - scarce at the best of times, and accessible provision being almost non-existent. About the particular vulnerability of disabled women when it comes to sexual assault and brutality in care homes or by carers, and the difficulties in reporting and being heard, as well as barriers to accessing services. And about multiple identities, and how disabled women can experience multiple discrimination from within the disability movement, other women, the community and society.
"It is about raising the voices of our disabled sisters. It is also about ensuring our recognition within this struggle for human rights. [...] We all have a responsibility to ensure that disabled women are recognised, and respected, as equals within this struggle, and all our voices to be heard. We are women too."



[Edited to add - There are transcripts of these speeches here, thank you so much to Eleanor, one of the speakers, for letting us know, and to Felix Gonzalez for making the videos and doing the transcription. More transcripts of speeches of the day will be published at http://connectculture.wordpress.com/ in due course.]

Monday, March 08, 2010

Charter of Rights of Women Seeking Asylum

Asylum Aid has created a Charter of Rights of Women Seeking Asylum.

The way that we are treating these women is appalling. Completely ignoring the trauma they have suffered, we are locking them up or forcing them to beg and sleep rough, without support, healthcare or money.

Asylum Aid have created this video.

Every single woman from Asylum Aid on Vimeo.



They say,
We believe a change of culture designed to produce a genuinely gender sensitive asylum system is urgently needed to ensure that women seeking asylum receive a comparable standard of treatment to women in similar situations who are settled here already.


There is also a campaign briefing available, and they are campaigning so that all member states of the European Union to adopt gender guidance so that women's asylum claims will be dealt with consistently.

(cross-posted at The F Word)

Sunday, March 07, 2010

Headache

I've had a headache for a week. Constant. I've been taking painkillers following surgery, then I've had a horrendous mouth infection, so taking more painkillers for that. So I couldn't understand why I still had a headache!

So I read about painkiller headaches. That sounded right. Taking painkillers can cause headaches. So I read, you're supposed to stop taking the painkillers to make the headache go away. But I'm not taking the painkillers for the headache, so what to do? I can't stop taking them or my mouth may explode and my foot fall off (not that I'm prone to exaggeration).

But then I read that you only get painkiller headaches if you are taking the painkillers for the headache. If you are taking them for some other reason, they don't happen. And I am, I'm taking them for my leg and my mouth.

So, I still have a headache and no idea why. I initially thought it was a pre-menstrual one, then it carried on post-menstrually. Then I thought it was the toothache causing it. It could still be I suppose.

I don't know. I'm just moaning.

Sunday, February 21, 2010

Misery

One of my problems is that I ignore things my body and mind are telling me to such a degree that they have to pretty much knock me on the floor before I pay attention.

I had surgery on my leg last Thursday, and as today there was slightly less pain than yesterday, and as I could walk 3 steps without crutches, I spent a lot of the day determined to be HAPPY dammit. It was only when I found myself sobbing, and this carried on for a good half hour, that I realised how much I'd been kidding myself all day.

Things might be marginally better than yesterday, but I'm still tired, in pain, traumatised by surgery while awake, wondering what on earth is going to happen next, feeling seriously let down and scared.

But when I don't want to see it, I don't see it. Until I'm forced to.

Friday, February 19, 2010

Tuesday, February 16, 2010

Blame the Victims... Again!

I had the misfortune of watching Carol Malone on TV this morning. She said that if women get drunk or dance provocatively, it's really their own fault if they get raped.

She also said that men can't be blamed for raping women when they (the men) are drunk, because they don't really know what they're doing.

Double standards much?

Monday, February 15, 2010

Who is Most Committed?

This awesome woman shows the madness of gay marriage bans.



Friday, February 12, 2010

Pharmacology

Pharmacies seem to have a new policy of doing medication reviews with patients, and as I use whichever pharmacy is most handy at any given time, I keep using different ones and thus having more and more medication reviews.

Today's was interesting. It turns out that two of my meds cancel out the action of one other, and that that one other cancels out the action of the other two. Interesting! All three prescribed by the same person, incidentally.

Also, the pharmacist made an assumption about my mental health diagnosis on the basis of the meds I'm on. It is a diagnosis I have had in the past, and his guess seems as arbitrary as the numerous guesses I've had from numerous psychiatrists I have seen, so no harm done.

He was impressed that I knew what each of my medications was for. It's worrying, he said, how many people don't. I'm the kind of person who always wants lots and lots of information. I can't imagine swallowing stuff daily without having researched it thoroughly, never mind not knowing what it was even prescribed for.

Someone in my family has been on antidepressants for 21 years, and she still has no idea that that's what they are. She obediently swallows them every night. I haven't had the heart to tell her, but I don't know if I should or not. She knows I looked it up, and she hasn't asked me for details. If she asked, I would definitely tell her, but as she hasn't... I dunno. The doctor tells her that they help her to feel better, and that she would feel much worse without them, so she should keep taking them. She's of a generation to not really challenge doctors.

As for me, I keep taking the pills. I'm reducing the odd one slowly, but I seem stuck on them for the time being at least.

Monday, February 08, 2010

Sheffield Cake Weirdness

One of my favourite blogs, when I want a giggle, is Cake Wrecks: When Professional Cakes go Horribly, Hilariously Wrong. So today, when I spotted these two gems in the same bakery window in Sheffield city centre, I had to sneak a couple of phone pics and share them.

First of all, is a penis cake. It's a cake of some boxer shorts, with a huge penis pointing upwards. Well, I can't think of anything else it could be. The blobby things on top of the penis are buttons, which backs up my theory. As a penis cake, it's very good I suppose. But is this the way to advertise your cake decorating expertise in the window of a shop on a main road?!

08/02/2010

08/02/2010


Who is Rachel? Did she really want a big penis cake??

Then, I looked down. Right below it, their sole other example of their skill, was a cake with a spelling mistake.

"Happy birthday Mummy Abiola, Elegance PersonifEId"

08/02/2010


Perfect completion to the display, I think you'll agree!

Sunday, February 07, 2010

Pope Benedict XVI

The Catholic Church has contributed more than most to the oppression of women. Whether it's the deaths of women in childbirth and of HIV / AIDS due to their commitment to preventing safer sex, or covering up the abuse of girl and boy children and protecting the abusers, they have consistently chosen paths which keep women controlled and 'in their place'.

This is the church that ordered the excommunication of everyone involved in helping a 9 year old girl, who was pregnant with twins after being raped by her stepfather, to have an abortion. The church actively tried to prevent the termination, and when it failed it ordered that the child's mother and the doctors involved be excommunicated. (Not the step-father, tellingly).
"If the B52 bombers flying over Vietnam were dropping contraceptives, the American Catholic hierarchy would have condemned that in a minute, but they were dropping napalm"
-- James Carroll

The Pope has also been in the news this week for speaking out against the UK government's equality policies, which would have required churches to stop discriminating against LGBT people. This is a man who, when he speaks, people listen. Just think what he could use his voice for. He could protest poverty, he could condemn domestic violence. But no, he speaks out against equality.

Later this year, the Pope is planning a visit to Britain. Not only do I not want him here, I was really disgusted to hear that the £20 million cost of his visit will be paid for by public money. Just think how many Rape Crisis centres could be funded by that money!

The National Secular Society have started a petition to ask the Catholic Church itself to pay for the visit. As I write, it has 17,457 signatures, one of which is mine.

The Catholic Church, contrary to the guidance of many passages of the Bible, is a very rich institution. If this man, who played a leading role in a systematic cover-up of child sex abuse by Roman Catholic priests, wants to come here, let him pay for it himself.

(cross-posted at the f word)

Saturday, February 06, 2010

Rape Victims Blamed Again

Virginia Wood has a really interesting post on her blog about yet another form of blaming women for being raped.

This time it isn't what she was wearing, what she had drunk, or her fantasies, but is actually her own history of trauma and her lack of awareness of her surroundings.

Many women have a history of trauma, and I can't imagine there are any who are constantly aware of everything that's going on around her. Neither of these make it her own fault if she is raped.

Similarly, even if you are aware of your surroundings and don't 'freeze' when attacked, that is not necessarily enough to prevent rape. Virginia gives certain examples,
Maybe it was a "blitz attack", which of course by definition would mean she wouldn't have known she was even being attacked until she was already down. Or maybe her rapist had a weapon: I have to ask--do men really believe that a martial artist can kick a gun out of an attacker's hand like good ol' Chuck Norris on the teevee? And then there's the rapist who comes in through the bathroom window in the middle of the night and has you under his control before you even wake up. Now how you gonna karate-kick his ass outta bed with your legs all tangled up in the kivvers? And then there was the woman I knew whose attacker told her if she cooperated, he wouldn't harm the children sleeping in the next room: All the martial arts training in the world won't trump that one.

[...]

Let us note that one in every six women in the U.S. will be assaulted in her lifetime. Maybe it's just me, but I think that's frequent enough to suggest that we are not, in fact, in control of our own destinies--at least not when it comes to rape. Indeed, that kind of thinking sounds to me like a form of privilege: The not-raped can believe they did/do something to earn/deserve that status ("I kicked the shit out of him!" or "I'm always aware of my surroundings." Always? Really?). That kind of thinking allows the not-raped to feel safe and secure in the fantasy that "it will never happen to me" and to look down on victim/survivors as people who screwed up somehow.

Victim-blaming, even in this guise of scientific research, is rife. Somebody, somewhere is missing the fact that the person to blame for a woman being raped is the rapist. Always.

When I was at sixth-form college, two police officers came in to give us a talk about safety. The boys were sent to one room with a male police officer, to receive a talk about driving safely. The girls were sent to another room with a woman officer, to receive a talk about rape prevention.

Quite why the girls didn't need to be given the same advice about safe driving was bewildering, but the weirdest thing was it was the girls being told how to prevent rape rather than the boys.

In that talk, we were told that 2 out of 3 rapes could have been prevented (by the victim). How's that for victim-blaming? Imagine how that felt for rape survivors in that room! Being told by a cop that really they should have been able to do something about it was humiliating and vicious.

And what's more, 3 out of 3 rapes could have been prevented - BY THE RAPIST NOT RAPING THEM. That is where the blame needs to be laid. Every rape that ever occurs could have not happened, if the perpetrator chose not to do it.

That is the point. Men can stop rape. They have to.

(cross-posted at The F Word)

Monday, January 11, 2010

Let Go!

I've been told about the phenomenon by various disabled people, but had never experienced it myself until today. The phenomenon of a complete stranger grabbing hold of you without warning, to 'help'.

Today was the first time I left the house since the snow started. It was a very scary prospect, helped a lot by yaktrax. My walking can be pretty dodgy at the best of times, but amidst ice and snow I just haven't been able to risk it. But by today I was tearing my hair out. I needed to see something other than my 4 walls. So, yaktrax and woolly hat on, I ventured out.

It was pretty precarious. The city centre pavements were worse than I'd anticipated, but I did most of what I had to do, then waited for my bus home.

It was when the bus arrived that the presumably well-meaning man grabbed me. From behind. By the shoulders. The jumping-out-of-my-skin which resulted was far more likely to make me lose my balance than any amount of ice, and his holding onto my shoulders was hardly going to help with that.

It was only when he said, "Here, let me help you on the bus" that I knew I wasn't being mugged.

I know, I know, he was only trying to help. But seriously, grabbing a woman from behind is not a good thing to do. It's inappropriate and way too invasive to personal space. And when that woman has a walking stick, which is perhaps why you're grabbing her, you're probably more likely to cause injury than to prevent it.

If you really want to help, just ask. I would have actually appreciated being able to hold onto Mr Grabby's arm to help me on the bus, had he asked if I needed any help. Don't presume, don't grab, don't force a blind person across the road or a wheelchair user down a kerb. If you ask, and they need help, they'll tell you what you can do. And you won't frighten or injure them that way.

Friday, January 01, 2010

Resolve Not to Resolve

It's that date when, every year, people resolve to go to the gym, lose weight, cut out nice food and starve in the pursuit of thinness.

The fact is that you really do not need to do this. You are allowed, as a woman, to take up as much space as you take up. You are allowed to resist the messages relentlessly bashing us over the head from the media which insist that we copy celebrities and hate every inch of our body which is not clinging unhealthily to bones.

95% of diets fail. Their whole philosophy is one of deprivation and undernourishment, which is not something that the vast majority of people can stick to for any length of time. The result being a cycle of miserable starving and bingeing, which feels endless.

The trick is to stop dieting at all. Start to love yourself and your body exactly as they are. By all means do your best to eat well, but banning foods will make them more tempting than ever, and punishing yourself via what you put in your mouth creates a horribly negative relationship with food, and food is something that we have to deal with every day of our lives if we are to survive.

(Cross-posted at The F Word)

Monday, December 21, 2009

Christmas

It is very strange for it to be a few days before Christmas and I'm not running around buying last minute presents or wrapping paper. I finished all my shopping a couple of weeks ago, and my wrapping last week. Cards all sent. Odd.

Today is winter solstice, so after today the days start getting longer again, which will be much appreciated.

Hope you all have a fab Christmas time!

Tuesday, December 08, 2009

Amanda Knox

I first wrote this for the F Word blog.

Amanda Knox has been convicted of the murder of Meredith Kercher, and if you weren't paying attention, you might believe that she did it alone.

In fact, two men have also been convicted of the murder - one last night and one last year, but they are very much secondary to the story, even though, as far as I can tell, it has never been decided who did the actual killing.

Now, I have not studied the trial or the evidence, and I do not know whether Amanda Knox did or did not kill Meredith Kercher, but I do know that this is seeming to be another legal case where the woman involved is demonised to a degree rarely seen in male defendants.

And the fact that Amanda Knox appears to be a young woman with some confidence in her sexuality has certainly worked against her. That she had condoms and a vibrator in a see-through bag has been widely reported, as some kind of proof that she was deranged enough to kill her housemate in a sex game.

That her nickname is Foxy Knoxy has been repeatedly mentioned, though very few reports tell you that that nickname apparently came about due to her skills on a football field rather than anything more salacious. Because that wouldn't fit the story quite so well.

With the murders of Holly Wells and Jessica Chapman in Soham, Maxine Carr has arguably been more slated by the press and public than Ian Huntley, who actually killed the girls. Maxine Carr's crime was to lie to the police by giving Huntley an alibi, and there is no indication that she did so with any knowledge of what he had done.

Amanda Knox even got a longer sentence than Raffaele Sollecito, who was also convicted of Kercher's murder. Issues which seem to have been used against Knox during the trial are so telling about what women are still up against compared to men in these situations.

1. There was a youtube video showing her drunk.
2. She sent an email to a friend saying she had had sex on a train.
3. She wrote a story about a woman being raped and a photo of herself with a machine gun entitled 'the Nazi'.
4. She did cartwheels in the police station while waiting to be questioned.

Now, while the third of these is certainly questionable, and the fourth somewhat odd, the first two are unremarkable, and are in no way legal evidence for murder.

According to the Guardian,
Italians shrug off extramarital sex, yet they are prim in their attitudes to premarital sex, at least outside the stable context of fidanzamento (engagement). They use the same words for boyfriend and fiance.

So many were taken aback to learn that, by the time she was arrested at the age of 20, Knox had had sex with seven men. They were less outraged by how this information was obtained: Knox was told in prison she was HIV-positive and asked to write a list of her lovers. Before she was told that a mistake had been made, the list was passed to investigators, one of whom passed it to a journalist.

The ethics around that 'mistake' are appalling, particularly if it was a tactic to obtain information about her sexual history to use against her during the trial.

Amanda Knox may or may not have committed this murder, and I certainly do not know whether she did. However, two men have also been convicted and rarely even mentioned. That Knox is a woman, and a woman with some sexual history, appears to have damned her.

Monday, December 07, 2009

God Wants to Cure Me

DSC_9725


Yesterday a man approached me at a farmers' market, and said, "I can't help but notice you use a walking stick". This exact phrase is regularly used by people who want my address to send me mobility aid catalogues in the post.

However, he then went on to say, "And God wants you to walk home without your stick. I have seen healings here today, and wonder if you would let me pray for you so that he can heal you."

I was amused at the time, refused his offer and walked on. However it wasn't long until I was actually furious.

Firstly, how dare he make all sorts of presumptions on the basis of my using a walking stick? Actually, my stick is a good thing. It helps me to get around without falling over, which is always a bonus. Sure, it's a hassle sometimes and it's wrecking my wrist, but his outlook assumed that mobility aid = awful, must be fixed. When my outlook is mobility aid = great, helps me go places.

And secondly, I don't think that your God does want me to walk without a stick. If he did, he's had a good few years now to sort that out, and hasn't. If he was that bothered, he'd have done it by now, and frankly wouldn't need you praying to him to get around to it.

So please, don't make presumptions about my rather gorgeous purple walking stick, whether I should want to get rid of it or not, and whether I want you to get inside my head by promising something you can't possibly achieve, by means of superstitious nonsense.

Sunday, December 06, 2009

Not-So-Helpful Advice from Women's Magazines

My fifth guest post at the F Word.

Yesterday while waiting for an appointment, I picked up one of the women's magazines on the waiting room table and started skimming through it to pass the time.

I came across an article entitled '25 health tips women doctors want you to know'. I thought this may be interesting - or at least more interesting than how to emulate the latest look from the latest celeb, so I started to read.

To say it was disappointing is somewhat understating the matter. One tip told me to use moisturiser. Another to walk rather than take the lift. Another to eat plenty of calcium. Then one tip was to buy a vibrator. While this may be good advice, the explanation behind it was infuriating! It said that some men are not good at foreplay, and if this is the case with 'your man', then rather than be frustrated, get a vibrator instead and you won't have any problems any more.

On so many levels, this is dreadful! Firstly, many women are single, many are with women not men. Heterosexist presumptions still prevail everywhere. Secondly, still calling it 'foreplay' separates it from 'sex' as if they are two completely different matters, with one building up to the other rather than it all being one whole experience. And thirdly, if your partner is bad at sex, or does not understand your sexual needs or desires, then that is something to work on with them, have fun exploring and mutually learn about. Saying, 'oh he's not good at that bit' is kinda letting him off the hook, let's face it!

If your male partner was having trouble enjoying sex with you, you can be sure the magazines wouldn't advise you to get him a blow-up doll or simulated vagina, it would tell you 'how to please him' and exactly what you should do to make sure he was happy.

By all means buy a vibrator, and enjoy it. But don't take advice just because it comes from a doctor in a magazine and use it to substitute a partner with good technique rather than talking to that partner about the problem and what you do and don't like.

I very rarely read women's magazines these days, and if I do it tends to be the Chat and Take a Break type when I'm ill, rather than the beauty / fashion ones. But whenever I do look at those - usually in a doctor's waiting room - I see that the same old messages we have always had from them are still there.

A few weeks ago I made some photocopied flyers to surreptitiously slip inside teenage and women's magazines in shops. They counter some of the usual crap messages we get from these publications, and question their content. If you want to get hold of any of these flyers I'd be happy to send you some if you send me an SAE to
Pippa, PO Box 4663, Sheffield, S1 9FN
Alternatively if you want to get any of my zines just let me know when you order that you want some of the magazine flyers and I'll stick some in the envelope for you.

It's small actions like sticking the flyers in the magazines that can actually make a real difference. When we are feeling powerless in the suffocating patriarchy around us, knowing that a woman or girl somewhere who might never have been allowed to challenge the presumptions of heterosexuality, the fascist beauty standards around us or the everywhere-written laws of body hair, who bought that magazine today, may get some relief and empowerment from the words they unexpectedly find stuffed inside, really does help.

Saturday, December 05, 2009

A Tweet Too Far?

My fourth guest post at the F Word.

As an avid tweeter, I'm not sure how I missed this story when it actually happened, but I became aware of it about a week ago.

Penelope Trunk, a woman in America, was widely condemned after sending the following tweet:
I'm in a board meeting. Having a miscarriage. Thank goodness, because there's a f**ked-up 3-week hoop-jump to have an abortion in Wisconsin.

The main criticisms aimed against her seemed to be that:

1. it was insensitive to those who had had miscarriages and were devastated about it,
2. that it was an inappropriately detailed message, which her many followers did not want to read, and
3. that she was heartless and abortions are bad.

I think these are all different points, and the former certainly has more validity as a criticism. A miscarriage can be an utterly awful experience for a woman who wants the baby. And indeed women who aren't sure. There is huge grief, loss, fear and hopelessness. Penelope Trunk herself has experienced such a miscarriage, and said on her blog
there are many women who want the baby and have a miscarriage. I was one of them. I cried for days. I get it.

In a blog post at the time, she said
I am four months pregnant. But the baby is dead, inside me, and must be removed. I am devastated. I always knew this could happen, in the back of my mind. But you are never prepared for something like this to happen.

This is not a heartless woman talking! In defending her tweet, she says,
To all of you who said I should not be happy about having a miscarriage: You are the ones short on empathy. Any woman who is pregnant but wishes she weren’t would of course be grateful when she has a miscarriage. [...]

But if you have ever had an abortion, which I have, you would know that a miscarriage is preferable to an abortion. Even the Pope would agree with that.

It is clearly a difficult area to negotiate. Some women are devastated at miscarriages, others are relieved. I suspect that very few women who are relieved feel able to speak out about this, their fears confirmed by the attacks on Ms Trunk.

But if you have just miscarried a wanted child, I can only imagine how awful it would be to have read it.

On to point 2, it was detail that people did not want to know, it was gory and personal, and who wants to hear the details of that?

This is where I defend Ms Trunk absolutely. Women's bodily functions are normal and natural, not dirty and shameful. I talk openly about my periods, about the joys of using washable sanitary towels, and about having endometriosis and PCOS and the problems that come with that. About spending 4 days of each cycle in agony and unable to move. About the amount of blood that comes out.

As a teenager I was as coy about it as everyone else my age was. But then after several years of medical tests, investigations, interventions and surgery, I realised that it was ridiculous that I was not supposed to talk about *that*, whereas if the problems I was experiencing were in most other parts of my body, people would not shrink away from hearing the details.

For centuries, women have been taught that their periods, along with other 'women's things' should be kept quiet. And why should they? One of my favourite things is reading feminist radical menstruation writings and looking round the Museum of Menstruation site. Partly because I like breaking patriarchy's rules, and partly because it is fascinating.

I have no doubt that while some people would prefer I kept it all quiet, I have every right to talk about bleeding, and I will continue to do so.

Why, then, should Ms Trunk *not* talk about her miscarriage? If I want women to be free to talk about periods, breastfeeding, childbirth, and other 'women-only' subjects, so we all know we are not alone, then miscarriage must come into that too. She should not have to keep it quiet in order to not offend the sensibilities of delicate men who are reading. Miscarriage is a fact of life, and it is often painful and messy and emotional. And the more women feel able to discuss it, the less isolated and alone other women will feel, whether the miscarriage is, to them, a relief or a profound loss.

The third point is perhaps the most enraging. How dare she feel relief at miscarrying? How dare she be planning an abortion at all? How dare she complain about abortion provision?

I'm not going to use this post to argue about why women deserve ultimate control over their own bodies. But we do. I hope I'm preaching to the converted, but if not, the debate occurs in so many places that it should not be necessary here.

Ms Trunk's situation does, of course, brings up issues of access to abortion. For a woman to have to be relieved to miscarry, because getting an abortion is so fraught with difficulties, is a really appalling situation.

I will not condem Penelope Trunk for sending that message. Not at all. At worst, it was perhaps insensitive, but this is a woman who was miscarrying in the middle of a board meeting. She might have been relieved, but it would nonetheless have been a difficult, awkward and painful situation. Sometimes women need to stop putting everyone else first and express themselves as they need to.

She had every right to feel relieved when she realised what was happening, and she should never made to feel shame at feeling that, nor should she be, or feel, silenced by others who find it distasteful.

Her body was going through something that millions of women experience. Some of those women are devastated, others are ambivalent, and some are glad. Some, like Penelope Trunk herself, miscarry more than once and feel very differently about each instance. And this is all common.

I recommend this post on the subject at DoubleX. She says,
not talking about a miscarriage or an abortion—or all the complicated feelings that can get rolled up in both—because it's just too personal is fine. But not talking about it because no one else ever talks about it—so maybe we're just not supposed too—is not.

We need the freedom to discuss the things we need to discuss, to continue the work of the feminist health collectives of the 70s and truly liberate ourselves.

Friday, December 04, 2009

Disabled Feminism

My third guest post over at the F Word.

I was very anxious before writing my first post here, but when the comments starting rolling in, I was overwhelmed by the positive messages in response to it.

Firstly, it really helped me. The encouragement that I am doing ok, I am doing good things, and I am making a difference, even if I can't necessarily do the 'outside' things.

And secondly, that it touched so many people. Not especially that my words helped, but that talking about disability and feminism seems such a rarity, and that many people were reading about it for the first time. I'm so glad I could do that, and I'm so glad that it provoked thought for some and reassurance for others, but we need much more!

I mentioned on my main blog that I had posted here, and one of the commenters there said,
Isn't it a shame that writing about disability and feminism and inclusivity is something that is still a remarkable thing?

And she's right! Feminism and activism really needs to catch up, and really address this.

I appreciate that some groups have limited resources, or not much choice of venue, but seriously, if you are a feminist group and you are not meeting in an accessible place, what are you thinking? Would you meet somewhere that excluded other groups of women? Some kind of white-only venue?

You wouldn't, because, even if the founding members of the group were all white, you would know instantly and instinctively that this went against every human and feminist value you have ever held. You would not want to associate yourself with a venue like that, nor would you want to support that venue in any way. If you did meet there, that would give out a message to black women that they were not welcome, so they would not enquire about the group, which might give you the impression that black women did not want to join the group, so it was ok, for the moment, to meet there. This might eventually give you the false impression that actually, meeting in a white-only venue wasn't so bad, black feminists weren't trying to join so it was less of an issue than you had predicted, and after all, the room hire is free.

You know, reading that, that it's wrong! And meeting in an inaccessible venue is the same. Even if no disabled feminists have enquired about the group, this may be because they know they can't use that venue. Or maybe they even turned up, waited outside for a while when they couldn't get in, then went back home. What if one of your regular members becomes disabled? Will they be no longer welcome?

However, overall there was a really positive message from the commenters to my original post, which is that online activism is relevant, is important, and does make a difference. Raising awareness, taking action and sharing stories and experiences can all be done extremely successfully online, and even more effectively than in real life at times. This is a good reminder to me, and to all the women who responded who also have limited spoons, whose uses have to be carefully chosen.

Kitt, in the comments, said
I know disabled feminists have a lot to offer - we have been forced to plumb the depths of our ingenuity to do the things we want to, using as few spoons as possible, and to choose our battles because we simply have to prioritise everything, everyday. Feminism has always benefited from the ingenuity of women - letting disabled people in will only add to this. We are another voice in the choir that will make the song sweeter and stronger.