Let Us In! Blogging Against Disablism Day 2011 #badd2011

Today is Blogging Against Disablism Day 2011, and this year I wanted to look at how accessible feminist groups are in the UK to disabled women. So I emailed several feminist network groups at random, whose email addresses I could find, to ask the following questions:

1. Does your group meet in accessible premises?
2. In what ways do you meet the needs of disabled feminists who are / want to be members of your group?
3. Are there aspects of access, and other needs, that you find difficult to meet? Why?
4. Is there anything you would like to say about disabled feminists being included in activism?

The 3 groups I heard back from all reported that they were doing their best to be accessible, but in some cases were having trouble with this. Funding was quoted a few times as a problem, that finding accessible rooms which were also free to hire was very difficult.

Solent Feminist Network, for example, meet in two venues, one of which is accessible and the other not. However, they have a deaf member and have had some good ideas about how to make meetings more accessible to her, and are proactive in inquiring about disability access to other events which they might be promoting or attending.

Gloucester Feminist Network are newly formed and have only hold one meeting so far, but did meet in an accessible venue, inspired in part by being accessible to people with buggies as well as disabled access. They were also aware that there is more to access than physical things, and hoped they could meet anyone's access needs as they occurred.

Finally, Bristol Feminist Network, whose regular meetings are not accessible. They identified the difficulty of finding free accessible rooms, and of not wanting to meet in places like pubs which might not be 'friendly' to women from various communities. However, they are aware that it is a problem, and are taking the issue seriously by continually seeking more accessible venues to meet. And for events, rather than regular meetings, they do strive to always make those accessible, and also mention that they do a lot of online activism which is more accessible to some people.

Sian from Bristol Feminist Network summed up the issue really well, saying

I think that it is vital that feminism looks across all privileges and takes intersectionality seriously and does all it can to be accessible to all. I cannot tell you enough how long we have spent discussing and talking about trying to find the right venue. It will happen because we cannot continue to work in this way. Disabled feminists face discrimination on many levels, vawg [violence against women and girls] effects disabled women at disproportionate levels, workplace discrimination and the cuts are affecting disabled women - we need to work together to fight patriarchy.

One of my first posts at the F Word raged about this issue, and while I stand by how infuriating the situation is, I also cannot rage at individual feminist groups for not meeting in accessible venues. As long as businesses and organisations completely ignore the Disability Discrimination Act and Equality Act and do not provide reasonable adjustments, for instance a ramp or an induction loop, then it is harder for local, grassroots groups to find places to meet that do meet even the legal criteria, never mind the ideal.

The groups I heard back from were at least aware that they may not have as an accessible a group as they wanted, and I do wonder if they replied because of this. The groups I did not hear from may be doing better, or worse, or have not considered the issue, but I only had just over a week to gather responses so it might just be that they did not have time to reply.

There are some recommendations I would make, however.

• All feminist groups should, at the very least, have a prepared statement about how accessible their meetings and events are, to disabled people. Ramps, large print leaflets, a quiet room somewhere nearby, regular breaks, an induction loop system installed, accessible toilets, grab rails, accessible parking, nearby public transport, whether steps have handrails, etc. etc. The best way to find out how accessible your meeting place is, is to ask disabled people to tell you. Often centres for independent living and other disabled groups offer accessibility surveys.
  
  
• If this is an issue your group has not looked at in detail, it has to start being one. You are not representing women, you are not supporting or fighting for women, if a large group of women can't get in, especially if you haven't considered it.
  
  
• Don't believe that you only have to start looking at disabled access when a disabled woman expresses an interest in your group. If there isn't an accessibility statement on your website, or even if a woman sees the venue you meet at, and knows she cannot get in, she may well not contact you to express an interest. The assumption will be made, and you may never know about it.
  
  
• Don't look at the issue as 'letting' disabled women take part, or that you should be an accessible group because it's the right thing to do (although it is). Do it because disabled women have new and different skills, opinions and tactics to contribute to the group, like any new woman who gets involved does. You're not doing us a favour, you're doing yourselves one!
  
  
• If you have limited choice of venues, which are inaccessible, take the initiative and put pressure on those venues to become DDA-compliant. We disabled folks sometimes get tired of always being the ones battering the doors down to try and get in - others taking responsibility to hold businesses to account as well can only be a good thing.
  
  
• Don't assume you know. It is ok to not know, and holding disability awareness events and training for your group, preferably run by disabled people, is a good way to get an understanding of living with impairments, and of the ways society disables us. Because, key to the Social Model of Disability is the understanding that we are not disabled by our bodies or minds, but by steps, small type, complicated language and tiny toilet stalls.
  
  
• If you have a website, do your best to make sure it meets web accessibility standards. If it can be read by a screen reader, and text size easily adjusted, this is a good start. Making easy-read alternatives to your leaflets available on the site is really useful to many learning disabled or neuro-diverse people, and large-print leaflets, and transcribed videos for visually impaired and hearing impaired people.

Please let me know in the comments of how best you think feminist groups can be accessible to disabled women.

[Image is the Blogging Against Disablism Day logo. It contains 20 coloured squares, each with a stick figure in, some with apparent impairments. At the top is text which says Blogging Against Disablism.]

BADD Post #3

Today is Blogging Against Disablism Day 2009 (you knew that already, right?). I wrote post #1, Creative Protest against Disablism, and post #2, about Access to Healthcare for disabled people.

Some of my favourite posts from the day so far are:

• Piss On Pity
  
• Don't Assume
  
• "Mainstream" Schooling and Disablism
  
• Psychophobia 201
  
• Ableism and a Watershed Experience
  
• When My Disability Is Invisible
  
• No, I'm Spasticus
  
• A living, learning experience
  
• Well-Meaning Insults
  
• The pill that retains my humanity
  
• I Like a Good Fight
  
• Queers United
  
• Street Harassment Edition
  

Access to Healthcare: Blogging Against Disablism Day 2009

Well, it's that time of year again when we blog against disablism. It's such a massive topic that it is very difficult to know what to say, what to write about.

I want to talk about disablism within healthcare. It is a huge subject, and there are many issues, and I can't cover them all in this one post.

I will begin with the very funny, and worryingly apt, Code of Ethical Behaviour for Patients

DO NOT EXPECT YOUR DOCTOR TO SHARE YOUR DISCOMFORT
Involvement with the patient's suffering might cause him to lose valuable scientific objectivity.
BE CHEERFUL AT ALL TIMES
Your doctor leads a busy and trying life and requires all the gentleness and reassurance he can get.
TRY TO SUFFER FROM THE DISEASE FOR WHICH YOU ARE BEING TREATED
Remember that your doctor has a professional reputation to uphold.
DO NOT COMPLAIN IF THE TREATMENT FAILS TO BRING RELIEF
You must believe that your doctor has achieved a deep insight into the true nature of your illness, which transcends any mere permanent disability you may have experienced.
NEVER ASK YOUR DOCTOR TO EXPLAIN WHAT HE IS DOING OR WHY HE IS DOING IT
It is presumptuous to assume that such profound matters could be explained in terms that you would understand.
SUBMIT TO NOVEL EXPERIMENTAL TREATMENT READILY
Though the surgery may not benefit you directly, the resulting research paper will surely be of widespread interest.
PAY YOUR MEDICAL BILLS PROMPTLY AND WILLINGLY
You should consider it a privilege to contribute, however modestly, to the well-being of physicians and other humanitarians.
DO NOT SUFFER FROM AILMENTS THAT YOU CANNOT AFFORD
It is sheer arrogance to contract illnesses that are beyond your means.
NEVER REVEAL ANY OF THE SHORTCOMINGS THAT HAVE COME TO LIGHT IN THE COURSE OF TREATMENT BY YOUR DOCTOR
The patient-doctor relationship is a privileged one, and you have a sacred duty to protect him from exposure.
NEVER DIE WHILE IN YOUR DOCTOR'S PRESENCE OR UNDER HIS DIRECT CARE
This will only cause him needless inconvenience and embarrassment.

The reality is that many disabled people receive inadequate medical care. People with mental health problems can have huge problems getting physical problems to be taken seriously. People with physical impairments can find that any other symptoms or illnesses they have are dismissed. People with multiple impairments can be written off as hypochondriacs.

Perhaps doctors consider that if you are already in pain with one problem, then additional, unconnected pain is not that important. Certainly, many doctors feel that if you experience madness then surely a physical symptom is all in the mind. I've lost count of the number of times that I have been told that something treatable I'm experiencing will *not* be treated, 'because you already take a lot of tablets'. When I vomited every day for 10 months, I was never sent for tests because it was 'bound to be anxiety'. Medication side-effects are not taken seriously - serious though they may well be.

The result is that disabled people suffer more than we need to. Health is neglected, and further problems result. We may not be straight-forward patients, we may cause the doctor to need to work a bit harder, but that's not an unreasonable expectation, surely. It is their job.

Being listened to, being taken seriously, being treated well, are all things which everyone should be entitled to, and which everyone should receive.

In the news recently was harrowing accounts of neglect of learning disabled people who were supposed to be receiving healthcare:

There was a man, Martin Ryan, who starved to death after not being fed for 26 days while in hospital. Five other people's care was also slammed.

The British Medical Journal states that:

One year after its damning report into the delivery of health care to disabled people, the Disability Rights Commission, the statutory watchdog organisation for people with disabilities in England, Wales, and Scotland, says in a new report that little has changed to bridge the gap in health care.

The Disability Rights Commission report:

An investigation into healthcare given to people with mental health problems and learning disabilities shows they often get worse treatment than others.

The Disability Rights Commission (DRC) - which examined eight million health records - says the government could face legal action unless things change.

The study concentrated on primary care in England and Wales, which will soon fall under new equality laws.

The government says it has already started acting on the report.

The 18-month investigation shows that people with learning disabilities and mental health problems are more likely to have a major illness, to develop a serious health condition younger and to die sooner than the rest of the population.

Such people were less likely to have routine tests and screening to pick up signs of a problem in its early stages.

'Lazy fatalism'

The DRC also found that people with learning disabilities and mental health problems face "real barriers" when accessing services.

"The acid test of a national health service is not whether it works for those who are generally healthy, but whether it benefits those with the greatest risk," said DRC chairman, Bert Massie.

He said that the response from the government and the NHS was "deeply inadequate", a situation which was made worse by "a dangerously complacent attitude and a lazy fatalism" on the part of the medical profession.

"This is completely unacceptable - we need to see a radical change in the commissioning, targeting and delivery of health services in order to close this gap quickly."

The British Medical Association (BMA) has described the findings as "extremely worrying".

"As doctors, we believe it is unacceptable for the healthcare needs of this group of people to be ignored," said Dr Sam Everington, who co-chairs the BMA's equal opportunities committee.

He said the report would be discussed by GPs at the BMA in the near future.

The Department of Health said it would be working with the DRC to develop a full response to the investigation.

Mental health charity Sane said it was "disturbing" that people with mental illnesses were at greatest risk of becoming physically ill through neglect.

The charity's Marjorie Wallace called for a "new drive amongst all health professionals to ensure that each time a person with mental illness receives medical help, they are given a physical health check".

Eight million records

The investigation spoke to senior health professionals, policy makers and disabled people themselves.

Researchers analysed eight million health records in three primary care trusts (PCTs) in England and one local health board in Wales.

The DRC says that in spite of increased needs of these two groups, important checks are provided less often.

For example, people with learning disabilities who have diabetes have fewer measurements of their body mass index, while those who have had a stroke have fewer blood pressure checks.

The investigation identified a problem known as "diagnostic overshadowing" - where symptoms of physical ill health are often seen as part of a patient's mental health problem or learning disability and are not properly investigated or treated.

More than 50% of people who spoke to researchers said they experienced difficulties when trying to see their GP.

They identified the attitude of reception staff, inflexible appointments and inaccessible information as being some of the causes.

A few said they were not registered with a family doctor or had been struck off the list for being too demanding.

The report did identify areas of good practice but the DRC says services are frequently working in isolation and initiatives developed by specialists have not become part of the mainstream.

The government is being urged to put in place a number of improvements to "close the gap".

"We agree with the broad thrust of the DRC's recommendations and have already started to act," said health minister Rosie Winterton.

She said £7m had been made available to almost 90 PCTs to employ "wellbeing nurses" to help mental health patients.

The department has also allocated £42m to PCTs to help them to implement further measures to improve the care of people with learning disabilities.

This is not theoretical, this is actually happening, and I witness or experience it myself, all too often.

If disabled people are to ever have equal access to society, we need equal access to good healthcare.

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Please see also my other Blogging Against Disablism Day post, over on my photography blog, where you can see various empowering disability rights designs I have created.

BADD

Blogging Against Disablism Day is coming up. Watch this space on May 1st.