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Towns and cities around the UK will see protests tomorrow (30th September) against Atos, the IT Company responsible for carrying out the con-dem government's Work Capability Assessment. As part of a National Day of Action Against Atos, organised by disability, claimant and anti-cuts activists, people will be gathering outside Atos' offices in Edinburgh, Leeds, Manchester, Nottingham, Brighton, Chatham, Cheshire, Birmingham, Glasgow, Hasting, Norwich, Oxford, Bristol, Chester, Plymouth, Sheffield and York.
In London a demonstration is being held outside the BMJ Careers Fair where Atos will be exhibiting in an attempt to recruit doctors to work on their Disability Assessment teams. Thousands of people have been denied or stripped of vital benefit because of decisions made based on Atos' assessment procedure which involves a short interview and a computer based test. Many people have had conditions worsened, either by being forced into the workplace, having much needed money withdrawn or the stress of the assessment process, which has been described as relentless. Sadly some have taken their own lives after hearing of Atos and the DWP's decisions to remove their benefits. Even people with cancer and other terminal illnesses have been deemed 'fit for work'. The government has pledged that this form of testing will be extended to all disability and health related benefits.
This week over one hundred groups and individuals signed a letter to the BMJ and the RCN urging them to stop allowing Atos to recruit at their events and in their publications.
An online protest will see companies and organisations which do business with Atos contacted and informed of this company's 'callous and cruel' treatment of disabled and sick people.
Supporters of Disabled People Against Cuts have said that "As long as ATOS continues to treat disabled claimants little better than animals they will continue to protest against them and seek means to discredit them."
[The image is a photograph of a blue sticker which reads "Feel the power of the disability vote". It is from an American disabled people's campaign, but is just as relevant here.]
The DWP published a press release yesterday, reinforcing the status of benefit claimants as primarily suspected criminals. Titled Cheats warned of benefit fraud blitz, it describes how claimants who live in "high risk postcodes" will be scrutinised, "regardless of age, gender, ethnic make-up, type of benefit recipient, income, disability breakdown or family status".
The lucky claimants in Birmingham's B44 postcode, the Perry Barr and Kingstanding area, will be the first to receive the Mobile Regional Taskforce. Yet again, benefit claimants are automatically under suspicion, simply because they are unlucky enough to have to rely on government money, and now because they live in certain postcode areas.
It does not explain what makes a particular postcode 'high risk', but I would imagine they are made up of areas which are more deprived, with higher numbers of people already living in poverty. So, the more likely you are to need government support, the more under suspicion you are?
Benefit claimants are not criminals! While finding people who are committing fraud on a huge scale is clearly important, this move just reinforces the propaganda coming freely from the government and certain parts of the media that we are all ripping off 'the taxpayer' and need hunting down and prosecuting. It increases people's anger at us, and our fear at our situation, over which we have no control.
Tomorrow will see the Hardest Hit campaign against the cuts action in London. It is an opportunity to protest the cuts which will affect disabled people so devastatingly, and join together with other disabled activists.
If you can't make it to the march, for whatever reason, you can protest online and there is also a really good guide for writing to your MP.
Full details of the route, and frequently asked questions have been made available, and they have also created a flickr group, a twitter list and a facebook page, tuning in well to the influence of social media in recent protests and campaigns. Hardest Hit is also including lobbying MPs about the Welfare Reform Bill into the protest, which can also make a palpable difference to the situation of disabled people in Britain.
Hardest Hit has the potential to be a huge and important event for increasing visibility of the issues facing disabled people during these so-called 'times of austerity', and the involvement of several big charities may increase the likelihood of media interest. At a time when disabled people are being constantly vilified in the right-wing press, raising awareness of the issues we face could begin to change perceptions and increase support for disabled people in Britain.
The whole of the Where's the Benefit? is dedicated to talking about why the welfare cuts are not only demeaning but downright dangerous, and it would be wrong of us not to mention Hardest Hit. However, not everyone on the team, myself included, feel we can fully get behind the demonstration.
Some of the big charities and organisations involved in organising the Hardest Hit campaign are ones which, historically at least, have been a part of the oppression of disabled people. Disabled People Against Cuts have publicly withdrawn their support of the demo, saying,
Do we ignore the fact that organisations might be viewing disabled people as ‘helpless cripples’ so long as they are prepared to come out and oppose the cuts? We believe it is precisely because we are facing severe attacks upon our rights and lives at this moment in time that there is even more reason than ever to ensure that the messages we’re sending out and the actions we take are clear and work in the long term best interest of all disabled people. I make no apology for saying that DPAC refuses to “turn a blind eye” and betray certain groups of disabled people for some mythical “greater good”. Some may accuse us of cutting off our noses to spite our face or needlessly creating barriers where none exist, however, it is our view that it would be hypocritical of DPAC to speak of defending people’s rights, including the right to independent living and self-determination, if we gave a nod and a wink to anyone who is engaged in activity undermining these rights.
Other concerns involve the motives of the charities. Miss Dennis Queen writes,
When campaign success is going to happen you can count on these charities use their plentiful resources to to sweep in and be there to help government 'resolve' the anger, fear and penalties disabled people face. They get to sit at the table with Government and make sure THEIR business interests get served first, not the interests of disabled people. They take control of matters for government, claiming to be the people who represent disabled people and 'look after us' so nobody else need get bogged down in the detail.
A post I wrote last December talked about Disability Works UK, who were bidding for contracts to carry out the Government's compulsory back-to-work schemes. Disability Works UK is made up of 9 disability charities and organisations. 4 of these (Mind, Mencap, Scope and Leonard Cheshire Disability) are listed as supporters of Hardest Hit. I find it hard to understand how they can support a campaign against the cuts, while seeking to profit from the legislation that will result. Would we support a march organised by ATOS or A4e?
But the aspect which caused perhaps the most concern was the announcement that Maria Miller had been asked to speak. Maria Miller is the Minister for Disabled People, and she is fully behind the disability benefit cuts. She has, unsurprisingly, turned down the invitation to speak at Hardest Hit, but the fact that she was invited in the first place poses yet more questions about the motivations of the march's organisers.
There is always a fear that it is wrong for us to show disunity in public. Will people use that to discredit the movement as a whole, or the good done by parts of it? It's possible, but I also believe that we are doing ourselves a disservice if we do not speak up about what concerns and hurts us.
Where's the Benefit? are not endorsing the event, nor are we opposing it. We are here to report on and discuss issues to do with disability benefit cuts, and the Hardest Hit march is without doubt a part of this. Many disabled people are supporting it, and everyone hopes that it is a great success. We all want change, and for many, Hardest Hit is one step towards this. It is well organised, well publicised and could make a real difference. The potential differences in motives and structures are less important than the message, and the impact that this campaign could have. However, for other disabled people, it is more problematic, for all the reasons I have outlined above.
So for those of you who are participating, I hope it is fantastically successful. For those not, there are many other ways to protest the cuts. Keep reading here and take a look at DPAC's Week of Action against ATOS Origin, for a start.
Other disability blogs and websites have already done some great posts on this subject, and I wanted to draw attention to some of what is being said around the interwebz on the reform proposals.
I don't know whether I'll be able to make my way through reading the consultation document myself without breaking things and / or having a complete meltdown, but if I do I will try to summarise it in a blog post when I have.
There are plenty of must-read articles and blog posts which I haven't had the time or the spoons to cover. All of the following are well worth a look.
Scope are running a survey about the real costs of being disabled, which you can fill in here.
"On the Shoulders of the Vulnerable", an article from Morning Star with information about ATOS and how ESA medicals are failing disabled people, especially those of us with mental health problems.
Laurie Penny in the New Statesman writes Strictly Come Scrounging, Anyone?, about The X Factor vision of society [which] blames the poor for their predicament.
Hopi Sen and Left Futures point out the contradiction in David Cameron criticising those claiming over £20,000 in housing benefits, compared to his own expenses claims for his second home.
Crisis, a national charity for single homeless people, have created a comprehensive, myth-busting press release full of information on how the government are 'peddling myths' to sell the Housing Benefit cuts.
The same article is looked at on This Is My Blog, who looks in depth at 'abandoned claims' and why they might really happen.
Susannah posts a plea for help, describing how the removal of the Mobility Component of DLA from people in residential care will directly affect her brother.
I am touched and moved that so many people have contacted me, and commented, in such a supportive way. It was a very scary thing to do, but it also felt very important. Thank you everyone.
The last few days I've watched the videos from BendyGirl at Benefit Scrounging Scum, and I loved them, I thought they were brilliant. But I never thought it was something I could do, until in her second video she pointed out how important it is for everyone to speak out.
Like many, many people I am frightened by the proposed changes, the cuts, to disability benefits, and what's going to happen to services and the third sector.
The thought of withdrawing mobility rate... the thought of withdrawing the mobility section of DLA for people in care homes is disgusting. The thought that just because somebody was living in a care home, they no longer need to go anywhere, they no longer need mobility equipment, is just obscene.
The changes in housing benefit rules so that people under 35 in private rented accommodation can't get full housing benefit if they live on their own is disgusting.
And limiting ESA to one year, when so many people were fighting against the very principle of ESA at all, and now to have to change that fight to at least, it was perhaps better than nothing, and if people are going to be put on it because they are considered fit to work, even though we know that many, many people who are not fit for work are being put on ESA, the fact that that's now limited to one year, and nobody seems to know what would happen after that.
When we are in a recession, and people – everybody who isn't working is finding it difficult to find jobs, and the strange assumption that the few jobs that there are will go to disabled people, is just not unfortunately how this society works. Disablism means that disabled people are discriminated against every day, and that includes the disabled person who is well enough to work can find it more difficult to find that job because employers are frightened, or don't want to make changes, or don't know what it means.
I'm frightened. And I'm also, like many other people, very confused. I watched the budget on Wednesday, and I was thankfully using twitter at the same time because there were many aspects that I didn't understand, or that I thought I must have misheard. And that there was a group of us all watching and using twitter at the same time made it more accessible to me, I guess.
But there are many unanswered questions. I've heard of people ringing the DWP to say, 'What's this about ESA being stopped after a year?' and the DWP not being able to answer, because they don't know.
The Housing Benefit cuts, I've heard so many different stories about who it's being cut for. So it's not just that the changes are frightening, it's that they're very unclear, and people don't know where they stand.
When I first became ill and went on benefits, I just got Income Support, and it was a horrible time. With paying part of my rent out of that, and with making debt repayments out of that, I had £15 a week for food, and electricity, and transport. For months I lived on... I used to buy these tins of Irish Stew from Kwik Save, and they were disgusting, but they were really cheap, and I figured it was as close to a balanced diet as I could get because it had meat and potatoes in it. And for months, every day, I had one meal a day, and that consisted of Kwik Save Irish Stew and as much bread as I could eat. Every day. For months. I couldn't afford sanitary towels, I couldn't afford shampoo.
I didn't know about other benefits. And someone told me about DLA and I applied for it, and I eventually got it, and it was one of the key... it was key for me, it was vital. Because my health was bad enough anyway, it was vital for me because I could afford to eat more than Irish Stew. I could afford to go to places on the bus. And I'm talking medical appointments. Before that I was missing medical appointments because I couldn't afford to get there. I could get taxis. I could get ready meals when I wasn't well enough to cook.
Getting DLA literally changed everything for me. And makes, still makes, such a difference. It means that I can afford the extra things I need because I'm disabled. Like taxis. Like ready meals when I can't cook. Like mobility aids, and other aids I use. DLA, along with everything, is being threatened. With ATOS taking over the medicals. And after what they've done with the ESA medicals that's frightening, and many people who need DLA are going to lose it.
Everything that is happening since the new government came in is frightening to disabled people. And I'm not a Labour supporter. I know that various important Labour politicians have come out and said that they would be doing what the Conservatives are doing with regard to disability benefits. So I'm not falling into the trap of saying, 'the coalition government is awful, Labour is the answer', because they are... although they are fighting some aspects of the budget, they are supporting the disability benefit cuts.
I feel like I'm being punished for being disabled. The press and the government are doing a really good job at the moment of whipping up hatred, whipping up this image of disabled people being scroungers, of disabled people not really being disabled, and being workshy and lazy. The government and certain parts of the press are promoting this strongly and I can feel, in the atmosphere, that this is affecting people's views. And with the further cuts, this gets worse and worse.
What depresses me is not my illness. What depresses me is not my impairment. What depresses me is how I am treated because of it. That's what makes everything so much harder. We do need to speak out. Because disabled people are being scapegoated and it's horrible. And for non-disabled people, you don't know what's round the corner. I became disabled. Many people become disabled. It could be you in a few years, with no care packages, with no benefits, with no support. With people thinking... with people thinking you're lazy or can't be bothered, or exaggerating. Nobody's immune from disability. And there are some people in the government, the Prime Minister included, who really should know that through their own lives. I am so... I'm frightened, and I want to give a message of hope, but at the moment it's hard to find one.
So I'll agree with BendyGirl that the hope... maybe we have to get hope from each other... from knowing it's not just us, it's not just me that's frightened, it's not just me that's confused, who doesn't know what's happening and what's going to happen.
Scope are running a campaign to email your MP to ask them to take action immediately to oppose the cuts to the public services and benefits that many disabled people in the UK use and rely on.
All you have to do is fill in your contact details, then your MP's email address is automatically found and you can read and alter the proposed message before you confirm that you would like it to be sent.
It's impossible to overstate how terrified some disabled people are, in Britain right now.
The fear of benefit cuts is so high, and so real, and attitudes like those of Nadine Dorries add to the climate of terror.
Already people are scared to leave their house for fear of being reported to the DWP for faking their illness, now those who find networks like twitter to be a lifeline are becoming frightened to post.
If you are stuck in bed, and you've found a way to use your laptop lying down, or you can use a phone or iPad, sites like twitter are perhaps the only way for many to actually communicate with others. It may be the only conversation someone has for a week.
One purpose that these threats serve is, I suspect, to keep us all quiet. We can't complain about the process of reapplying for DLA, or of the ATOS assessments, if the very complaints we type will be used as an additional stick to beat us with. Even if typing those 140 characters used up so much energy that we then had to sleep for an hour to recover. Or hurt our eyes so much that we have a migraine for 3 days.
On days that I can't leave the house, and can't use the phone, the internet is the only tool I have to communicate with the outside world. I don't want to lose that. But the fear affects me as much as anyone, and right now so many of my outlets feel threatening.
This is what the threats to disability benefits are doing to me. It is worsening my madness significantly, which, ironically, will make me less and less able to work, not more.
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